I finally got my MRI scheduled. My neuro prescribed a brain & cervical spine with & without contrast for both. It's going to be a long MRI this time. Most of the time she doesn't ask for the contrast but since I have had so many problems the past few months she did. I usually tune out the noise & fall asleep just as they are done. Maybe I'll get a little nap this time! LOL, I won't see my neuro until Dec 8 but will get the MRI results before then. In the meantime, I have to find another DMT that will work & that my insurance will pay for. Ocrevus quit working altogether for me. I am so disappointed cuz it worked so well for the first year. Then my last infusion didn't work at all. Over the last 6 mos. I have had flares on an average of every 1 1/2 weeks & a couple of new symptoms. I really don't want to go back to Copaxone cuz the injections were leaving hard knots on my hips and belly & sinking my arms as if it was deteriorating the tissue. I've used Rebif(6mos), Techfedera(2yrs), Copaxone[7 & 3](12yrs) & Ocrevus(2yrs). I have a month to research & decide. I have RRMS any suggestions? I really appreciate y'all.
MRI Thursday: I finally got my MRI... - My MSAA Community
MRI Thursday
![hairbrain4 profile image](https://images.hu-production.be/avatars/df17251592d3155cbee1871aac075ef1_small@2x_100x100.jpg)
![hairbrain4 profile image](https://images.hu-production.be/avatars/df17251592d3155cbee1871aac075ef1_small@2x_100x100.jpg)
I wish you all the best. I really hate the mri with and without contrast and have the full scan of the brain and spine. I usually take my muscle relaxers but I still get squirmy. When it was just my brain I could relax and nap. I hope that you find a good dmt. I am still doing really well after finishing up year 2 of mavenclad. I am not promoting it to you this medication is not for everyone I have read some crazy stories about it from some I also heard some good news. Good luck my prayers are with you
good for you being able to fall asleep in the machine! i'm a bag of nerves and require sedation. i hope they find a working dmt for you soon.
Square breathing can help.
How to do square breathing:
Begin by slowly exhaling all of your air out.
Then, gently inhale through your nose to a slow count of 4.
Hold at the top of the breath for a count of 4.
Then gently exhale through your mouth for a count of 4.
At the bottom of the breath, pause and hold for the count of 4.
i might try this on my insomniac nights. thx! (still need anaesthesia for mri's)
Good luck with your MRI. I hope that they are able to find a good med for you. I know there are so many out there now and many more in the pipeline. Hopefully there is something you can take that helps. Keep us updated when you can.
I think the med change decision depends on what your options are and if you prefer a pill or not. Maybe your MD can pick 3 for you to research while you wait.
hope you find some thing that will help you ...so sorry about all of the problems ...it is the pits when it doesn't work ...wow ...prayers to find some thing fast and that it works for you ...be safe ....love and happiness...
I loved Tysabri. I was on it for six years. It worked better than any other ones I tried. Let us know what you decide! Good luck with the mri.
I'd give Provigil a try I was on it for several years with no issues. I would still be on it but I had ran into a case of cancer and I was off DMT'S for two years and that changed everything about my MS. With that the neurologist put me on Ocrevus.
Have you tried Aubagio? Little blue pill once a day. Works for me. I didn't do well with the shots either.
That is one that I'm looking at. But it's one that my insurance doesn't cover. Sometimes they will cover if the Dr can get it pre-approved.