MRI Thursday

[hairbrain4]

I finally got my MRI scheduled. My neuro prescribed a brain & cervical spine with & without contrast for both. It's going to be a long MRI this time. Most of the time she doesn't ask for the contrast but since I have had so many problems the past few months she did. I usually tune out the noise & fall asleep just as they are done. Maybe I'll get a little nap this time! LOL, I won't see my neuro until Dec 8 but will get the MRI results before then. In the meantime, I have to find another DMT that will work & that my insurance will pay for. Ocrevus quit working altogether for me. I am so disappointed cuz it worked so well for the first year. Then my last infusion didn't work at all. Over the last 6 mos. I have had flares on an average of every 1 1/2 weeks & a couple of new symptoms. I really don't want to go back to Copaxone cuz the injections were leaving hard knots on my hips and belly & sinking my arms as if it was deteriorating the tissue. I've used Rebif(6mos), Techfedera(2yrs), Copaxone[7 & 3](12yrs) & Ocrevus(2yrs). I have a month to research & decide. I have RRMS any suggestions? I really appreciate y'all.

[Turtlepie]

I wish you all the best. I really hate the mri with and without contrast and have the full scan of the brain and spine. I usually take my muscle relaxers but I still get squirmy. When it was just my brain I could relax and nap. I hope that you find a good dmt. I am still doing really well after finishing up year 2 of mavenclad. I am not promoting it to you this medication is not for everyone I have read some crazy stories about it from some I also heard some good news. Good luck my prayers are with you

[hairbrain4 in reply to Turtlepie]

Thank you.

[jimeka]

Hope you find one that suits you and that works 👍

[hairbrain4 in reply to jimeka]

Thank you.

[BlanketTime1]

good for you being able to fall asleep in the machine! i'm a bag of nerves and require sedation. i hope they find a working dmt for you soon.

[falalalala in reply to BlanketTime1]

Square breathing can help.

How to do square breathing:

Begin by slowly exhaling all of your air out.

Then, gently inhale through your nose to a slow count of 4.

Hold at the top of the breath for a count of 4.

Then gently exhale through your mouth for a count of 4.

At the bottom of the breath, pause and hold for the count of 4.

[BlanketTime1 in reply to falalalala]

i might try this on my insomniac nights. thx! (still need anaesthesia for mri's)

[falalalala in reply to BlanketTime1]

I did it one time to keep from exploding at someone.

It really does work.

😂😂😂

[hairbrain4 in reply to falalalala]

It sounds like what they used to teach in Lamaze classes to block out labor pain. It worked for me at least till the Dr decided that I needed a caesarian after taking an x-ray, no sonograms back then (47 yrs ago) & 8 hrs of labor.

[bxrmom]

Good luck with your MRI. I hope that they are able to find a good med for you. I know there are so many out there now and many more in the pipeline. Hopefully there is something you can take that helps. Keep us updated when you can.

[hairbrain4 in reply to bxrmom]

Thank you.

[falalalala]

I hope you find something that works for you.

[hairbrain4 in reply to falalalala]

Thank you.

[kdali]

I think the med change decision depends on what your options are and if you prefer a pill or not. Maybe your MD can pick 3 for you to research while you wait.

[hairbrain4 in reply to kdali]

Thank you.

[twooldcrows]

hope you find some thing that will help you ...so sorry about all of the problems ...it is the pits when it doesn't work ...wow ...prayers to find some thing fast and that it works for you ...be safe ....love and happiness...

[hairbrain4 in reply to twooldcrows]

Thank you.

[Amore55]

I loved Tysabri. I was on it for six years. It worked better than any other ones I tried. Let us know what you decide! Good luck with the mri.

[hairbrain4 in reply to Amore55]

I have a friend with MS that is on that, but I really don't want to go on a 2-hour drive each way to the closest infusion center once a month or I would consider it.

[JTZES]

I'd give Provigil a try I was on it for several years with no issues. I would still be on it but I had ran into a case of cancer and I was off DMT'S for two years and that changed everything about my MS. With that the neurologist put me on Ocrevus.

[hairbrain4 in reply to JTZES]

Thank you! Provigil is mostly for energy. I used to take it but when I went on Ocrevus I didn't need it. I have had to use it a few times over the past couple of months after covid.

[mrsmike9]

Have you tried Aubagio? Little blue pill once a day. Works for me. I didn't do well with the shots either.

[hairbrain4 in reply to mrsmike9]

That is one that I'm looking at. But it's one that my insurance doesn't cover. Sometimes they will cover if the Dr can get it pre-approved.

[mrsmike9 in reply to hairbrain4]

It is SO expensive, so that's probably why the insurance won't like it. MS One to One may be able to help.

[hairbrain4 in reply to mrsmike9]

They didn't cover Ocrevus either but I was able to get on their help plan. They paid for the drug & my insurance paid for the treatment.