I'm told it "can't be" MS because I am 75. However it "walks like a duck and talks like a duck," so I think it's quite possible that it IS a duck. A duck whose name is MS.
I had a severe illness last spring and think I almost "bought the farm" as we say here in the US. It was an intestinal tract illness and I could not keep anything down or "in" me and did not ingest anything in any quantity for a couple of weeks., plus I was severely dehydrated. I was thin to start with and got down to 78 pounds, looking somewhat skeletal. I didn't start to recover until I got a 25 gram vitamin C IV.
But it was after that, that I developed this symptom set that sure looks like MS. Toes and fingertips are numb; skin numb-ish all the way up to my thighs, hands the same way. Tingles especially in my hands -- one hand will have a tingle on a "nerve path" and then right away the other hand, the same thing. Balance laughable - literally bouncing off walls. I finally developed a very wide stance so I could walk without looking like I'm drunk. Brain fog pretty bad (better since I started Lions Mane.)
But they tell me that because I'm 75 this can't be MS. Quack, quack.
I know a naturopathic physician who was literally a rocket scientist before he re-schooled to be an an NMD. Since I am a retired electrical engineer -- I know about and respect how this person thinks. He thinks that MS is Lyme disease and the reason people have not been diagnosed with Lyme is due to the fact that diagnosis depends on tests that don't show the presence of hidden spirochetes. There is a great youtube demonstrating this if you are interested.
So I am doing "everything under the sun I can think of" because, put mildly. this is not fun. One of those things is using my frequency machine which I know will cure Lyme because it has done that for people I know (as opposed to advertising and hearsay, although I just did hearsay.)
A facebook group I'm in has a small coterie who decided to do the Gerson protocol juicing. Since I already have the juicers I need to do that, and since I clearly was without nutrition including all my usual nutritional supplements for weeks before these symptoms started, I decided to do the juicing. It has only been a few days, and I can't assign cause to anything because it isn't a controlled study, BUT -- my balance issues are quite a bit better. Nothing else is better but one has to start somewhere, and not walking like I'm drunk is a good place.
That was long winded, but here it is.
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Bernaldi
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Welcome to the forum, Bernaldi . So, you haven’t been diagnosed with ‘ms’ yet? Like you said, if it quacks, looks, and walks like a duck, well… . I don’t understand the hesitancy except that doctors want to make a correct diagnosis. It took almost ten years for my diagnosis and it was frustrating to me. You can visit mymsaa.org for more information about ‘ms’. I look forward to hearing more from you.
I have only talked to various people. I haven't sought an official diagnosis because I'm unwilling to do the things that they would want -- not going to do an MRI with contrast and not going to do a lumbar puncture. Also not going to take immune-suppressing drugs which seems to be what they do (it's always drugs drugs drugs instead of addressing cause) so -- I'm on the quest to see what alternative things people have found useful in one way or another.
I take Lion’s Mane also and I swear by it. I also drink mushroom coffee a few times a week, which has 20 different types of mushrooms in it. I’m glad you found the forum. Please keep us posted.
the link below is s retired doctor that believes MS (and other neurological diseases) is connected to mercury poisoning (if you have dental fillings you probably have mercury poisoning). He recommends OSR : oxidative stress relief. Maybe it will help.
I had all my amalgams out quite a long time ago (safely) and never had a root canal. I do have mercury but attempts to remove it have not turned out well, inluding OSR, and I determined that it was better to just leave it where it is. What I do have is residual fluoride from FQAD that may be creating this particular havoc this time.
Hi, that sounds very much like a vitamin B12 deficiency to me and the two are often confused. Your illness is likely to have affected one carbon metabolism - tending to reduce your ability to absorb the Bs generally whilst increasing your need for them. Stress on the body in its widest sense will reduce vit C, D, magnesium, zinc as well as folate, B6, B2, B12.... The juicing will help but you may well need B12 injections. There are blood tests which may be useful in ruling in a deficiency but there are none to rule *out* a cellular B12 deficiency. As we age (>50) our ability to absorb B12 from diet starts to deplete increasingly, even if otherwise healthy. Some of us are already far from healthy or have some underlying cause which exacerbates that depletion. Best wishes
Oh my, you have been through the wringer! I am glad that you didn't buy the farm. I am not sure that it is possible to dx MS without and MRI or lumbar puncture. I, also have a nerve path thing going on in my right hand and arm. But mine causes and itch to travel not a tingle. Saying a prayer for you.
What I do about testing is look to the action that will be taken based on the result of the test. Since the action would be immune supressing drugs that there is no way I'm going to take (I am a recovered Moldie and we simply do not take that kind of thing) -- I can't see doing the test if I would refuse the treattment on principle.
Welcome to a lovely group of people! I’m sure you will always find someone who will listen and respond to your posts. I have already had some pretty good advice and in the grand scheme of life I am an old timer when it comes to an MS diagnosis… Ironically, I got lymes disease over 30 years ago..
welcome. i'm so glad you recovered. 78 pounds sounds terrifying. many of us have an illness a year or so before all this ms-esque nonsense starts, so that doesn't surprise me. it's as if the illness triggers the neurological madness somehow. i'm sorry you now have to deal with neurologists, as they tend to be effing a-holes, the lot of them. i know there's no magic nutrition cure, but eating right/juicing (i assume organic and you'll make sure you get enough calories, vitamins &etc) couldn't hurt.
I am not going to deal with neurologists because I think they have nothing to offer me. My current physician believes that MS is "Lyme disease that surfaced due to a trauma" and I think it is very likely something like that. My current guess is a herpes virus (not zoster) but I am going to see how his approach (which is not drugs) works along with my rife machine All of these "syndrome" diseases are just things that they have not looked in the right place for the cause so they do what they always do, which is keep testing deeper and deeper into the symptoms so they can prescribe a drug. Like the drunk who keeps looking under the street light for the keys he lost in the dark alley, because at least he can see under the street light.
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