Copaxone

[SunnyDays202]

Hi all,

Im out of meds, my dr has switched me off copaxone and i want my old friend.

I really could do with help. If anyone has spare please let me know its urgent.

Thanks

E

[tadpole0623]

why switched off Copaxone?

[Sandyz]

I would suggest you ask your Dr took you off the medication.

I no longer take copaxone. My Dr switched me off of it when it no longer worked for me. I then went to aubagio. I am now on Ocrevus. It's been 6 years with no progression or flares.

[MrStripey]

They've stopped making the Autoject, and my insurance no longer covers Copaxone, so I was switched to Mylan's generic in January. That may be the reason you were switched as well—ask! I don't like the Mylan autojector as well as Copaxone's, but the meds seem to be okay. You might actually prefer their autojector since it comes in a hard-sided case. What I don't like is that you have to assemble it Every. Freaking. Time. and it only has certain depth settings rather than being infinitely adjustable. Annoying, but you do what you gotta do.

[Frances_B]

Why do you think it is appropriate to join an online forum where you are anonymous and the same day you join you ask other people in the group to provide you with a prescription only medication?

If your doctor has taken you off Copaxone and you are not happy about that then you need to discuss that with your doctor instead of illegally trying solicit other people to provide you with the medication - and if anyone did provide you with the meds they would also be breaking the law.

[BettysMom in reply to Frances_B]

Well said, Frances. Thank you.

[OSU13]

Hi SunnyDays202!

I switched from Copaxone to Abagio 8 years ago. I am very happy with the change. I was on Copaxone for 20 years. I've had MS for 31 years. I could wait to stop giving myself a needle. And all the side effects that came with it!

[SvenKj]

I started Copaxone when diagnosed in 2000. My fatigue was worsening over the years and finally put me in a retirement community last year. Since I started Copaxone my MRIs have shown no additional lesions and this year at 62 my neurologist told me that my MS was "done", or no longer active, and gave me the option to stop. I have been off the med since March and haven't experienced anything different. Just happy to not be poking myself daily.

[BettysMom]

What you suggest is illegal. Please remove your message from this site.

[Xvettech in reply to BettysMom]

That’s exactly what I was thinking. Thank you for saying and confirming it

[johnMSAA Partner]

We are sorry you are having trouble with your disease modifying treatments. As other members have mentioned above, this forum does not allow actions like this, as you can imagine.

What we can suggest is that you are free to contact MSAA's Helpline to speak with our Client Services Specialists for more information on medication assistance, how best to talk to your doctors about such subjects, and other questions related to MS:

Phone: [phone], ext. 154

Email: [e-mail]

Online Chat: mymsaa.org/mschat

- John, Multiple Sclerosis Association of America (MSAA)

[stepsforNeeC]

Hi SunnyDay, Did you ask your doctor why without a “medication plan” of smooth transitioning? I understand Copaxone is expensive but, everyone has their own story. I’ve been on it for years, but have other health issues and had to consider the other medications may interfere with other prescriptions. In my sixties now, I may gradually come off in a few years if I continue on a good path so scary and I read the research. Always do what’s best for you, but quiet as it’s kept, a patient should never suffer without medication. States are also trying to impose Step Therapy/ Fail First (read about it) I recently posted about it. Stay strong be encouraged ❤️💐

[MSbeGone]

hello, did your doctor say why you were switched off copaxone. The progression of your disease could be the reason to be switched off.

[SunnyDays202]

Hi anyone who can help please pm me thanks. Im in the UK in a nightmare situation

[SunnyDays202]

Thanks for your comments and taken under advisement, nonetheless if anyone could help pm me id appreciate it. Terrible situation sadly