Posts - My MSAA Community | HealthUnlocked

My MSAA Community

9,169 members • 20,906 posts

All posts for July 2017

Both ends of the spectrum

Good news--I had a great family reunion with swimming and playing at a reservoir, camping, hiking and horseback riding. I had lots of energy and a great......

Good news--I had a great family reunion with swimming and playing at a reservoir...

StacyHayward

•7 years ago

6 Replies

Ouch!

Yesterday, I was driving on a busy highway, when all of a sudden I felt a horrible stinging pain in my right big toe. It felt as though my toe was being stung...

Yesterday, I was driving on a busy highway, when all of a sudden I felt a horrib...

Juleigh21

•7 years ago

7 Replies

Pain in my ass

Im feeling a stabbing pain in my left upper butt cheak. On the left side hurts alot and now it is starting to go down my whole leg in a straight line I . first...

Im feeling a stabbing pain in my left upper butt cheak. On the left side hurts a...

Stevieray

•7 years ago

5 Replies

Want to take advantage of all our features? Just log in!

Meds ~ What Helped Your Symptoms?

Hi Everyone, I suffer from chronic numbness/tingling/burning sensations in my hands/feet/arms/legs. Sometimes it is worse that others but it doesn't go away....

Hi Everyone, I suffer from chronic numbness/tingling/burning sensations in my ha...

Daring_Greatly

•7 years ago

15 Replies

New MS biomarker

See article --basically a new blood test that can determine disease activity and monitor DMT response that may replace spinal taps SUMMARY AND COMMENT...

See article --basically a new blood test that can determine disease activity and...

erash

•7 years ago

7 Replies

R A S

Wow. We were just talking about this rls feeling in arms and other areas. Now I sit here in my chair at 3am with my arm driving me crazy. This is the weirdest...

Wow. We were just talking about this rls feeling in arms and other areas. Now I ...

Doubled51

•7 years ago

19 Replies

I am celebrating!

Last week and the weekend were really difficult for me. We have had temps of 100 + for 6 days and my MS is giving me a heck of a time. Because of this, I...

Last week and the weekend were really difficult for me. We have had temps of 100...

Bygonelines

•7 years ago

36 Replies

New Ocrevus Findings Continue to Show Benefit

https://multiplesclerosisnewstoday.com/2017/07/07/new-ocrevus-findings-underscore-relevance-for-multiple-sclerosis-interview-with-hideki-garren-of-genentech/...

https://multiplesclerosisnewstoday.com/2017/07/07/new-ocrevus-findings-underscor...

dianekjs

•7 years ago

6 Replies

Numbness, not the normal stuff either!😕

Sometimes, our friends and family don't understand what this means. How do YOU explain it to them?😊 We have so many new members that I hope we get some...

Sometimes, our friends and family don't understand what this means. How do YOU ...

Jesmcd2

CommunityAmbassador•7 years ago

24 Replies

Binaural sound meditation to heal pain

Listen with head phones for best results https://youtu.be/KkylXcoTEiQ

erash

•7 years ago

7 Replies

Silly Question

With our roller coaster symptoms, is it possible to not recognize a relapse if the symptoms are not particularly intense or debilitating? The general...

With our roller coaster symptoms, is it possible to not recognize a relapse if t...

greaterexp

•7 years ago

26 Replies

Frighten

I am frighten that I made a mistake trying a new regimen for my pain management. The transition to partially change medication has been hard. Plus I can't...

I am frighten that I made a mistake trying a new regimen for my pain management....

TonyiaR7

•7 years ago

12 Replies

Mattresses

Does anyone recommend the best mattress for terrible back pain, spasms, spasticity. Also in my right leg and hurts if I lie on right side. My hammock feels...

Does anyone recommend the best mattress for terrible back pain, spasms, spastici...

agapepilgrim

•7 years ago

41 Replies

Love this site!

I was just looking over all the responses from my Dr. update post from yesterday! I love all the support! I also adore how a conversation can that is started...

I was just looking over all the responses from my Dr. update post from yesterday...

rlh1974

•7 years ago

8 Replies

$0 copay

I must admit that the more I work with Biogen the better I like them. When I originally started I mistakenly listed my insurance as Medicare but after thinking...

I must admit that the more I work with Biogen the better I like them. When I ori...

Doubled51

•7 years ago

8 Replies

8 days out!

8 days out still feel great! Next 1/2 dose next Friday!

cnichols

•7 years ago

7 Replies

Great site

http://positivelivingwithms.com/

Amore55

•7 years ago

1 Reply

Support group

Anyone around the Lexington KY area, Fancy1959 reminded me the next support meeting is Wednesday July. 16th at Malones Banquet on Tates Creek Road at 6 pm....

Anyone around the Lexington KY area, Fancy1959 reminded me the next support meet...

agapepilgrim

•7 years ago

3 Replies

Symptom Termination

I'd been employed by that company for almost nine years. No write-ups no council sessions or any reprimands. And on June 30th the owner terminated my...

I'd been employed by that company for almost nine years. No write-ups no council...

Kryptonian

•7 years ago

17 Replies

2nd half-dose Ocrevus Infusion Completed

As many of you following Ocrevus news and experiences are aware, the first 600 mg. dose of Ocrevus (ocrelizumab) is divided into two half-doses spaced two...

As many of you following Ocrevus news and experiences are aware, the first 600 m...

dianekjs

•7 years ago

9 Replies

Thanks for the support

It has been confirmed that my 2013 dx of MS was not just incorrect, but was made without any basis. We are completely stumped as to how the initial dx was...

It has been confirmed that my 2013 dx of MS was not just incorrect, but was made...

Fee09

•7 years ago

6 Replies

OMS Circles

Here's a link if you are interested in finding out if/when an OMS Circle may pop up in your neighborhood. kdali i bet you already know about this 😊...

Here's a link if you are interested in finding out if/when an OMS Circle may pop...

erash

•7 years ago

6 Replies

Dr update.

Hello all my lovelies! Gents included! I went to my Neurologist yesterday. I hate going there! She put me on a 3 day round of steroid infusions. This month and...

Hello all my lovelies! Gents included! I went to my Neurologist yesterday. I hat...

rlh1974

•7 years ago

39 Replies

Went to neurologist

Well I went to my Doctor yesterday it was a good day. I was told since I had been on the Tesfidara since 2013 and now am 58 years old. He the doctor doesn't...

Well I went to my Doctor yesterday it was a good day. I was told since I had b...

ssdw1958

•7 years ago

7 Replies

"Tapping" to "heal" auto-immune disease

Not sure if anyone is familiar with "Tapping" I believe it uses meridians to change thought processes and behaviors. Below is a link to Tapping for auto-immune...

Not sure if anyone is familiar with "Tapping" I believe it uses meridians to cha...

erash

•7 years ago

8 Replies

Ampyra Question

I've been on Ampyra since November 2016. I am also on Aubagio. I have RRMS and thankfully, other than episodes, I am fairly functionally and hope to stay that...

I've been on Ampyra since November 2016. I am also on Aubagio. I have RRMS and t...

toriartist

•7 years ago

9 Replies

M.S and change to my life.

hi. How i celebrate my first birthday with M.S which will be July 10?. I also need to know if flying in an international flight more than 16 hours and at...

hi. How i celebrate my first birthday with M.S which will be July 10?. I also n...

marie66mm

•7 years ago

17 Replies

Fingerprints

I just want to say to newly dx, or not. Everybody's case of MS is different!!! Just because someone has vision problems with their first attack. It may be...

I just want to say to newly dx, or not. Everybody's case of MS is different!!! ...

Ponymonroe

•7 years ago

4 Replies

Feeling Accomplished

46 lbs down on my 90 day Wahls Protocol Anniversary, 7 weeks Tysabri free, and in less pain with improved walking. I'm so happy that I finally made the choice...

46 lbs down on my 90 day Wahls Protocol Anniversary, 7 weeks Tysabri free, and i...

Hidden

•7 years ago

12 Replies

Going to neurologist

Thursday the 5th I am going to my doctor today to find out what medications are out there and if i change any. We will see, when I go I feel as if I am going...

Thursday the 5th I am going to my doctor today to find out what medications are ...

ssdw1958

•7 years ago

12 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for July 2017

Both ends of the spectrum

Ouch!

Pain in my ass

Meds ~ What Helped Your Symptoms?

New MS biomarker

R A S

I am celebrating!

New Ocrevus Findings Continue to Show Benefit

Numbness, not the normal stuff either!😕

Binaural sound meditation to heal pain

Silly Question

Frighten

Mattresses

Love this site!

$0 copay

8 days out!

Great site

Support group

Symptom Termination

2nd half-dose Ocrevus Infusion Completed

Thanks for the support

OMS Circles

Dr update.

Went to neurologist

"Tapping" to "heal" auto-immune disease

Ampyra Question

M.S and change to my life.

Fingerprints

Feeling Accomplished

Going to neurologist

Search posts

Pinned Posts

Latest poll

Have you ever attended a webinar hosted by MSAA?

Topics

Archive