My Scariest Symptom So Far

Awhile back, thankfully it's over, I started getting symptoms that made me question my sanity. More than the confusion and lack of focus I've already been dealing with. This was affecting behavior. I went from making noises, hissing, clicking etc., to babbling and speaking gibberish. I was totally aware of this and would get upset which would make it worse. Nobody saw it at this point because I was alone. After a few good arguments with myself full of babbling and crying, I told my husband. A lot of the time I could fight with myself and not make noises. These behaviors seemed to be triggered by fatigue, stress, or change in light (going from a dark room to a lighted room or vice versa). My husband finally saw an episode and just hugged me, which did wonders to calm me down, that caused me to laugh and cry at the same time. No episode lasted more than a few minutes. My behavior was very confused and infantile. I dropped my soda in the car and started an episode because I couldn't figure out what to do first. Put the things I was holding down, pick up the soda, ask for help, what? The car door closed on my foot as I was getting in. In retrospect it didn't really hurt. At the time you would have thought I had been severely injured. It took a few minutes for my husband to calm me down.

Before you say talk to your neurologist, I did. He got me an appointment to see a neuropsychologist due to this and family history (grandmother had premature senility starting at 55 and my sister (62) had just been diagnosed with early onset Alzheimer. I am 57). The tests showed I had very good memory and extremely poor concentration and focus. But at the end she said no to Alzheimer (yay!) and said my behavior could be explained by what she saw on my MRI.

This more than any other symptom I've experienced scares me the most. It's gone now and I really hope I don't get it back. I felt like I was losing myself and turning into somebody else.

10 Replies

  • I'm so sorry for your episodes. That has to be so frightening. I took care of my mom and mom in law their battles with Alzheimer's. I'm not a doc, but it seems to me your episodes are definitely stress event triggered and could be many different neurological reasons. I understand your fears. Until MS, Alzheimer's was my biggest fear. Amazing how MS changes perspectives. Please come here, keep in touch, best to you. Lynn

  • How scary for you @melack01! I hope that it doesn't return. Its good that you know some of the triggers so that maybe you can find some ways to prevent it.

  • I am sorry you had to go through such confusing symptoms. Hope they never come back.

  • Wow, that's amazing, I just recently had that type of episode that lasted nearly a week, and it was truly scary. I totally empathize with you on that. My doc keeps mentioning dementia, we'll see what the next tests come up with. I hope it doesn't happen to you again!

  • melack01 and GerriG I had one episode of speaking gibberish. It's called aphasia. Mine lasted for several hours. I was in an exacerbation and also had a migraine. I kept trying to tell my husband to get my migraine medicine. Once he finally understood, and I took some, it went away. The neuro said that it was caused by the migraine. I've never had it again, but he convinced me to go on migraine prevention medicine after this episode.

  • And yes, it was the scariest symptom that I have ever had.

  • melack01 could this be PBA pseudo bulbar affect? Almost sounds as if you are having out of proportion emotional responses that can be indicative of PBA.

    What did the neuropsych see on the MRI that she thought explained your symptoms?

    Scary, I bet

  • I was thinking possibly PBA also. She didn't mention what she saw but when I saw her I hadn't been diagnosed yet, was waiting for the results of the lumbar puncture. I didn't see anything about it in her written report either.

  • What a relief to have some reassuring news after those scary symptoms! I hope it doesn't happen again, but you are armed with some information about what is causing this and what to do. Your marvelous husband's hugs have some terrific medicine in them! Give him a big hug from all of us for being so supportive.

  • Thank you greaterexp

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