Shingles vaccine (Zostavax)?: I had a... - My MSAA Community

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Shingles vaccine (Zostavax)?

erash profile image
12 Replies

I had a routine visit with my PCP yesterday. She recommended I get Zostavax 2 mos. before considering Ocrevus or any of the other newer meds.

Yrs. ago, my neuro recommended against Zostavax because it's a live attenuated vaccine. I believe NMSS or MSSA now say it's up to you and your doc. I wondered if anyone had newer recommendations from their neuro--especially if you are on or going on any of the immune suppressing meds?

TIA

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erash profile image
erash
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12 Replies
erash profile image
erash

By the way, the non-live shingles 2 shot vaccine is coming soon but my PCP said Zostavax was a better choice as far as efficacy???

Royjr profile image
Royjr

Everything that I've read and seen is to avoid any vaccine that is a live vaccine while on an immune suppressant treatment. That's just what I heard.

erash profile image
erash in reply toRoyjr

Royjr definatley avoid once you begin immune suppressing therapy. This discussion was to consider before starting--preemptive

Iona60 profile image
Iona60

erash Before I went on Gilenya, they checked my titer for shingles (varicella?). As I had shingles a year before, my titer was still high. If not, I would have had to get the shingles vaccine. I questioned the neuro about the live virus aspect. He said, there was a risk that it would cause shingles, but it was necessary to get before going on the immunosuppressant. My guess it that it is better to get shingles before you go on the immunosuppressant than to risk getting them afterwards.

WAshingtongirl profile image
WAshingtongirl

I was told to NOT have the shingles vaccine-no live viruses with the MS. I didn't realize a new version (non-live) was coming out. Thanks, erash .

dianekjs profile image
dianekjs

erash , I was told the same as WAshingtongirl , by both my MS specialist and my rheumatologist. Live vaccines are more apt to trigger an immune activation in people with autoimmune disease. I would discuss the decision with your MS specialist rather than your PCP. I am starting Ocrevus in 2-3 weeks, had a thorough screening process, and no vaccines were recommended for me.

erash profile image
erash

Thanks! WAshingtongirl and dianekjs

I was def. planning to discuss with my neuro first.

AngieRowe profile image
AngieRowe

My neurologist said it's ok to take, I'm planning on taking soon.

mepilot61 profile image
mepilot61 in reply toAngieRowe

Hi Angie!!! I miss our visits!!!

greaterexp profile image
greaterexp

erash , I need to get in the loop with the texting abbreviations! For a second I wondered why you would bring up transient ischemic attacks! Ha! TIA!

erash profile image
erash in reply togreaterexp

Oops! Sorry greaterexp as you can imagine that's what I thought too the first time I saw TIA 😂

BillD999 profile image
BillD999

erash , I got a shingles vaccine a few years ago, on the recommendation of my pcp. At the time I don't think I was on any dmt, having previously tried a couple (copaxone, rebiif) without success. The interesting thing is that although my dr knew I had MS, I don't recall any discussion of other drugs I was on or interactions. I don't recall discussing it with my neuro at the time. I guess the moral is that drs are not perfect and we must always be critical and do research.

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