Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

1,735 members • 1,381 posts

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Chuckle Time

A young educated man is driving down the street, sweating in a frantic panic. He's late for an important meeting and can't find a parking space. He looks up...

A young educated man is driving down the street, sweating in a frantic panic. H...

Paul_and_Sue_Wood

•1 day ago

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pins and needles

hi everyone my husband has started to get pins and needles in his hands, is this one of MSA symptoms ?

hi everyone my husband has started to get pins and needles in his hands, is this...

•1 day ago

Advice please

Hi, my husband has probable MSA and we'd like to know if anyone has found a solution for getting chairs under a table to eat. He can't move it forward himself...

Hi, my husband has probable MSA and we'd like to know if anyone has found a solu...

•1 day ago

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PIP timing

do people think it better to delay a PIP application a bit and have stronger evidence, or apply now and gather what I can in the time I have? I have early...

do people think it better to delay a PIP application a bit and have stronger evi...

•3 days ago

hello

I have MSA. I was diagnosed earlier this month. I am currrently working out things to do to get support in place for me and my family. I think it’s early days...

I have MSA. I was diagnosed earlier this month. I am currrently working out thin...

•3 days ago

Chuckle time

A woman was having a daytime affair while her husband was at work. One rainy day she was in bed with her boyfriend when, to her horror, she heard her husband's...

A woman was having a daytime affair while her husband was at work. One rainy day...

Paul_and_Sue_Wood

•5 days ago

Urinary catheter?

Was wondering if anyone had advice / experience with urinary catheter (in-dwelling or supra pubic)? My beloved mother-in-law’s incontinence is so disruptive &...

Was wondering if anyone had advice / experience with urinary catheter (in-dwelli...

•6 days ago

re ‘just saying’

afternoon all, regarding my last post ‘just saying’. I hope I have not caused offence given at some stage these hours lost will become precious and missed,...

afternoon all, regarding my last post ‘just saying’. I hope I have not cause...

•6 days ago

DEALING WITH MSA

I STILL HAVE NOT FOUND OUT IF CAN GO ON A TRIAL. I BELIEVE I WAS DIAGNOSED EARLY IN LATE JUNE IN 2024. I AM POSITIVE. STARTED RTT - RAPID TRANSFORMATIONAL...

I STILL HAVE NOT FOUND OUT IF CAN GO ON A TRIAL. I BELIEVE I WAS DIAGNOSED EARL...

•7 days ago

what things do you still do?

It will be useful to know what things you still do and when you were diagnosed? I appreciate we are all different. I do not know how regressive my health is...

It will be useful to know what things you still do and when you were diagnosed? ...

•9 days ago

msa condition

I got diagnosed in june 2024 my heeath started to go downhill last year though I feel a sense that things will get alot more worse and struggle with this in...

I got diagnosed in june 2024 my heeath started to go downhill last year though ...

•10 days ago

Chuckle time

Mrs. Ravioli comes to visit her son Anthony for dinner. He lives with a female roommate, Maria.During the course of the meal, his mother couldn't help but...

Mrs. Ravioli comes to visit her son Anthony for dinner. He lives with a female ...

Paul_and_Sue_Wood

•11 days ago

The effects of Pneumonia on MSA

My husband is in his 7th year of condition. Last week he was admitted into hospital suffering with Pneumonia, he was discharged 4 days later after being given...

My husband is in his 7th year of condition. Last week he was admitted into hospi...

•11 days ago

just saying….

Just reflecting; by the time I get up, breakfast, washed and dressed I’ve just used up 2 and a half to 3 hours of my life that I won’t get back! Time flys...

Just reflecting; by the time I get up, breakfast, washed and dressed I’ve just u...

•11 days ago

options

Lions mane supplements are helpful and looking into RTT

Lions mane supplements are helpful and looking into RTT

•14 days ago

Leg pain

Good morning, the back of my thighs get painful it is like a continuous ache. I also get an awful pain similar to cramp up the whole of my calves during the...

Good morning, the back of my thighs get painful it is like a continuous ache. I ...

•16 days ago

4 Counties MSA Support Group (OX,WR, HR, GL) Wednesday 4th September

The next 4 COUNTIES SUPPORT GROUP meeting will be held on Wednesday September 4th at 2pm - We meet on the first Wednesday of every month either on Zoom or face...

The next 4 COUNTIES SUPPORT GROUP meeting will be held on Wednesday September 4t...

•16 days ago

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pain treatment

are there any pain medications that can’t be taken by those who have MSA?

are there any pain medications that can’t be taken by those who have MSA?

•20 days ago

Our Journey

So my beautiful wife and companion for over 30yrs has decided that she needs some time in a hospice, she began this journey with Symptoms in 2019 but we didn't...

So my beautiful wife and companion for over 30yrs has decided that she needs som...

•21 days ago

Care Pla

Hi Everyone I'm still trying to navigate mums care (she's 70) whilst trying to take a step back myself so that I can take care of my little toddlers needs...

Hi Everyone I'm still trying to navigate mums care (she's 70) whilst trying to ...

•22 days ago

New MSA sufferer

Hi I was wearing my fit bit and noticed my deep sleep has been affected. Since, being diagnosed I have monitored the use of cpap vs nasal breathing. I get...

Hi I was wearing my fit bit and noticed my deep sleep has been affected. Since,...

•22 days ago

jaw pain

I have been sick since 2016-saw 5 neurologists and 3 from major hospitals in San Francisco Bay Area. Neurologist #6 tried levodopa/carbidopa and got...

I have been sick since 2016-saw 5 neurologists and 3 from major hospitals in San...

Blanchedevereaux

•26 days ago

Awareness of MSA

Good morning all, I’ve been watching, with adoration, today’s start of the cycle challenge by Ed Slater and his team mates raising money and awareness of...

Good morning all, I’ve been watching, with adoration, today’s start of the cyc...

•1 month ago

Words of wisdom

Say no more....

Say no more....

Paul_and_Sue_Wood

•1 month ago

drinking cup

we have just ordered a Ehucon dysphagia drinking cup from Amazon as advised by a specialist nurse for our relative who is now having difficulty with swallowing...

we have just ordered a Ehucon dysphagia drinking cup from Amazon as advised by a...

•1 month ago

The letter

Just had the letter from the hospital last week which says "I worrying about his condition being the result of a multiple system atrophy ..." Made the...

Just had the letter from the hospital last week which says "I worrying abou...

•1 month ago

Opicapone

Hello I posted previously about Mum having a wearing off period between her levodopa doses and I am no minded that she may need her blood pressure tablets...

Hello I posted previously about Mum having a wearing off period between her lev...

•1 month ago

Emergency UTI antibiotic

Hi Everyone Reading this message board I know that quite a few people mentioned having emergency antibiotics on hand if they suspected a UTI. My Mum has been...

Hi Everyone Reading this message board I know that quite a few people mentioned...

•1 month ago

Ramp for entrance

Mainly for those in the UK. Sent council an email to see if I needed planning permission to install a dropped kerb over my gateway. They replied. They don't...

Mainly for those in the UK. Sent council an email to see if I needed planning pe...

•1 month ago

MSA trial near completion

Hi I am new here and I have MSA. I have been searching for all the info I can find. No real drugs to even slow this. I have read B vitamins are helpful'...

Hi I am new here and I have MSA. I have been searching for all the info I can f...

•1 month ago

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