jaw pain : I have been sick since 201... - Multiple System A...

Multiple System Atrophy Trust

1,765 members1,414 posts

jaw pain

Blanchedevereaux profile image
5 Replies

I have been sick since 2016-saw 5 neurologists and 3 from major hospitals in San Francisco Bay Area. Neurologist #6 tried levodopa/carbidopa and got Parkinson’s diagnosis. 2019 diagnosed with MSA probably C. Released from neurologist and now in Hospice for pain management.

Has anyone experienced pain in jaw and traveling up my face into head? Can this be caused by MSA? X-rayed teeth and no problem.

I just want to say I learn so much on this website- Thank you so much!

Written by
Blanchedevereaux profile image
Blanchedevereaux
To view profiles and participate in discussions please or .
Read more about...
5 Replies
Gallowglass profile image
Gallowglass

could be TMJ tempororal mandibular joint Syndrome? If so it can be treated successfully with a mouth “splint” made by your dentist! Or also called anNight Guard : a.co/d/9HqAjcO

Blanchedevereaux profile image
Blanchedevereaux in reply toGallowglass

Thank you Gallowglass

Ovx823k profile image
Ovx823k

my wife had very bad pain in her neck they call it coat hanger pain as my wife’s neck leans to the left. I’m just wondering if have bad neck pain if this is affecting your jaw. My did have Botox injections in her neck this did help for a few months but it cost £1000 $1300 dollars.

Blanchedevereaux profile image
Blanchedevereaux in reply toOvx823k

thank you for your reply

SamanthaMSAT profile image
SamanthaMSATModeratorStaff

Hi Blanchedevereaux,

This could be neuropathic pain (nerve pain) in which case it would be burning in nature and can travel. Drugs such as gabapentin can be helpful for this type of pain. Or it could be due to muscle rigidity and spasm in which case we would try a small dose of muscle relaxant at night i.e. clonazepam. If it is caused by extra uncontrolled movements (dyskinesia), you may need your Levodopa doses reducing.

You are in the right place to get your symptoms controlled; although MSA is rare, hospices are excellent at pain control. Feel free to share this message with your medical team.

Kind regards,

Samantha. MSAT nurse specialist.

Not what you're looking for?

You may also like...

MSA Clinics

👋 everyone, hope you're all as well as can be expected and looking forward to Christmas.Please...
Frenchoak profile image

Genetic Testing

My dad has possible MSA-C. It has been suggested by the Neurologist that he gets genetically...

Neck pain

Hi everyone, my wife has had MSA for a while now, she also uses a CPAP machine at assist her at...

Undiagnosed

since 2018 I have been diagnosed separately with most of the symptoms of MSA, plus other disorders...

Newbie

Hi, just introducing my self and hoping for some to understand this MSA. I am a retired Senior...
Soco74 profile image

Moderation team

See all
JamesMSAT profile image
JamesMSATAdministrator
NicoleMSA profile image
NicoleMSAAdministrator
MSATKirsten profile image
MSATKirstenAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.