Care Pla

[Purplestar2]

Hi Everyone

I'm still trying to navigate mums care (she's 70) whilst trying to take a step back myself so that I can take care of my little toddlers needs (she's almost 2 and being much more demanding! Thankfully she is in nursery but as u dont live close to my mum I need to take my toddler with me on my visits which means I can't do as much with Mum or really take her out in her whaeelchair as toddler no longer wants to toddler want me to hold her whilst also pushing grandma in a wheelchair!!).

So anyway, I am liaising with Mums social worker and what we have had in place is carers going in 4 times a day totally almost 4 hours (privately, rather than social services, up until her last discharge from hospital 2 months ago). But this just covers the personal care aspects and meals and doesn't include any social element.

I asked the social worker about options, I know someone with parkinsons who had an afternoon out with a carer (all through social worker not private) or I know some people go to day centres. Mum walks with a Zimmer in the house but wheelchair when she's out as you can't use simmers outside and the outdoor roller walkers are more difficult to use. But Mum needs a lot of help and support so I'm not sure whether day centre would work because I dont think they provide personal care? We also don't have anything down for holidays or anything. So at the moment unless I take her out (which I am struggling to do) she doesn't get out and is housebound.

Im just looking at advice really on what a care plan should look like and what is reasonable? Mum pays for all her own care as she gets my dads pension as his widow as well as her own.

It seems she doesn't get very much for almost £30,000 a year care costs. But I just can't go on doing everything else from the social prospective myself. Surely they must have to work the social aspect I to the care plan as that's the main think she has left that hasn't been eroded away by this terrible disease. She is all there mentally, which means life is very frustrating for her!

[Paul_and_Sue_Wood]

HiNavigating care support can be frustrating.

Get in touch with Sam at MSA trust as she knows all the benefits available.

Reach out to your local Hospice as they are also a good source of help.

Paul

[Lassie1331]

hi Purple Star,

It is daunting to begin with when someone needs lots of support. A support plan is basically to write down in detail the persons every need for day to day living, including likes and dislikes. I personally had a little experience with working in the care sector but I down loaded a typical support plan blank form from a MS website. If you have a good Social worker they should help with this. Also use MSA trust for all aspects. Your local council has a duty to care so should provide some funding for assistance to come in to your mum. Also your mum should apply for Attendance Allowance. I hope this helps.