The letter

Just had the letter from the hospital last week which says "I worrying about his condition being the result of a multiple system atrophy ..." Made the mistake of looking at Dr Google now unsure what to think

[Anovis]

Could you share a little more information? There are many people on this forum with a lot of knowledge but in order to respond to your post, more detail would help.

[Hidden in reply to Anovis]

The letter said I have parkinsonism and that the consultant is "worrying about MSA as pyramidal and cerebellar symptoms seem to be present as well". The consultant has sent a request for a MRI. There isn't much more in the letter

[Anovis in reply to Hidden]

What symptoms are you having? It seems you are early in what is a very challenging diagnosis. Are you seeing a Movement Disorder Specialist? There isn't a definitive test for MSA so it can take time for observation of symptoms and rate of progression. Are you pleased with your consultant thus far?

[seawaves]

I received a very early diagnosis of MSA. At my first consultation with the neurologist I was told that I had MSA; that my condition would deteriorate quickly and that I should look at being able to live on one floor as soon as possible. Effectively meant we should either add on a downstairs bedroom or move to a bungalow! The diagnosis was because aside from some standard PD symptoms I had issues with swallowing, breathing and voice distortion. 6 months later following a DaTSCAN I was told I probably had (Progessive supranuclear palsy) PSP. Another 6 months later I was reviewed by a specialist neurologist in Parkinson's plus syndromes and told I probably had MSA rather than PSP. Then another 6 months passed whilst taking PD medicines and responding favourably to co-careldopa to be told that I probably had PD with some Parkinson plus symptoms and that there was no reason why I should deteriorate quickly. The point of telling you all this is that the Neurologists don't know for sure. Be positive and take advantage of all services offered/available to you as a result of the uncertain diagnosis. I got help with all sorts as a result of what was effectively an uncertain diagnosis