MPN (probable ET, possible primary MF), now abnormal lymphocytes. Are these related?
Murryx2 years ago
Background: My husband was diagnosed with an MPN last August. He is Jak2+ and had a bone marrow biopsy indicating 25% scarring in his marrow...
Sunscreen advice for face needed please
Lainy12 years agoPOPULAR
Haem warned me about dangers of sun now I'm on hydroxy. I'm using kheils for face but I find it make my face look greasy and another one I ...
Summer is here - oh dear help!!!
Hilarya2 years ago
This is my first summer since being diagnosed with PV in December. I have been doing really well and take hydroxy 500 mg daily and venesecti...
Chris38752 years ago
I am undiagnosed with a MPN at the moment (meet with Haem on Friday) but I am on Hydrea 500mg per day and low dose aspirin and have had a BM...
6 Replies2 Likes
Interesting article on thrombocytosis in today's Times
AndyT2 years ago
5 Replies2 Likes
Ruthbragg2 years ago
Hello , I was diagnosed with et a month ago been taking hydroxycabamide for just over two weeks starting to feel tired and aching , I am so ...
Having problems with Reception of mpnvoice postings - help please
crapaud2 years ago
For the last couple of weeks I have not been receiving the mpnvoice postings. I haven't changed any of my settings, can anyone give any advi...
FEeling awful today
Garden9872 years ago
Hi Skipper. We all know where you're coming from so don't feel alone. Someone said to me "if we listen to our body's whispers we can ign...
Be the first to reply1 Like
sherri11112 years ago
Hello everyone, recently diagnosed ET. On 500mg HU daily. Doing well. Platelets near 1 mil. Drinking lots of water. Also on 81mg. of aspirin...
8 Replies1 Like
stevenjust2 years ago
I am finding myself drinking between 7-10 pints of liquid a day, mainly water with a small drop of cordial. To add to this I take ...
5 Replies1 Like
Mpn and Jury Service
mol562 years ago
I have been called for Jury Service end of June. I returned the form accepting as I felt it was my duty but since then have been having doub...
10 Replies1 Like
MPD life and Professor Harrison
Hi Maz. Have noticed that I haven't had a copy of MPD newsletter this year. Has my subscription run out? I also watched a video of a fo...
Skye3332 years ago
I have suffered with depression for 27 years since I lost my son. It's been under control for a long time now. Diagnosed with early stage MF...
12 Replies1 Like
skodaguy2 years ago
Just had eyes checked and told I had 2 pinpoint retinal haemorrages. Not surprised as plats 80 and thought could easily be caused by sneezin...
lizzziep2 years agoPOPULAR
Yesterday a relative asked me to a coffee morning, I said unfortunately it coincided with my haematology appointment. She asked why I went t...
33 Replies10 Likes
Feeling better today
skipperL2 years ago
After such an awful day yesterday I have woken up feeling relatively normal - what a strange illness this is! A big thank you for the suppor...
11 Replies3 Likes
Hidden grapefruit source
Just watched the latest Food Unwrapped. Apparently Earl Grey tea contains grapefruit oil and the cheaper the product the more it has rather ...
Hughesf2 years ago
ive jad 2 occasions now where for no reason and in a sittimg position ive blacked out.
1st on a plane to Tenerife last sept.
2nd in a hotel br...
Feeling awful today
skipperL2 years agoPOPULAR
Yesterday was so good - I felt full of energy - cleared out my cupboards, went clothes shopping, sorted out my oil paints - i felt the Hydro...
37 Replies7 Likes
PEGULATED INTERFERON -BONE PAIN
Poppy212 years ago
Hi I've had ET for 7 years now and have been put on pegulated interferon after other treatments failed to control my platelet levels. I'm fi...
DID ANYONES FATIGUE PROBLEMS BEGIN GRADUALLY?
katiewalsh2 years ago
Hi. I've been reading with interest the recent question about fatigue. My question is whether any of you had just mild fatigue in the beginn...
19 Replies3 Likes
Chelle_2 years ago
I currently have a pre-paid prescription card that I pay £104 a year. Do you all have the same or do you have the Exemption Certificates?
I've to start on hydroxyurea
Any advice would be appreciated.
Best wishes lainy 🤗
lucieboo2 years ago
Following my post from 3 months ago I must say the springtime has brought huge relief and I am back to normal. How strange this is! Why? Not...
3 Replies1 Like
night time cramps
Stephen399b2 years ago
I was diagnosed with ET last year and take Hydroxicarbamide (x2 daily) and asprin. Recently I have been getting really bad cramp in calf and...
Fatigue and heamotologists
It is quite shocking to read the number of examples of heamos dismissing the serious fatigue we all seem to be suffering with statements lik...
5 Replies8 Likes
Change Hydroxycarbomide to Pegasys?
Anita532 years ago
Hi all. I'm 70 and had ET from 2003 until 2014 when I progressed to PV. I was then put on hydroxycarbomide 500 my per day. It has brought m...
11 Replies1 Like
garden41BULBS2 years ago
PLEASE MAY MY SISTER Attend with me CHESTER
I haven't received any postings for the last few days, anyone else had any problems ?
I haven't changed any of my settings.
Perhaps the cyber ...
charlie982 years ago
Big thank you to Maz and all the team for a really great day yesterday. Special thanks to the medics for good information and help. Venue gr...
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