I know that this is not a serious symptom, but I was just wondering if anyone else keeps getting styes. I seem to get rid of one and then a week later get another. My eyes are very sore.I do all the recommended things with eye hygiene, changing makeup regularly and heat pad on my lids.
Could this be a side effect of ET or Hydroxycarbamide?
I have never heard of any direct relationship between styes and ET or HU. There may be an indirect relationship in that systemic inflammation is an issue with MPNs.
I experience blepharitis, dry eye, and conjunctivochalasis. This is unrelated to the JAK2/PV. the eye issues are treated independently of the MPN. I have been treating the dry eye with Cequa, which has made a huge difference.
Hope you find eye relief soon.
Thank you, Perhaps I need to see an ophthalmologist.
Definitely see an ophthalmologist for what you are describing. Hope all goes well for managing the issue.
I had a female Opthamologist advise using a soap based makeup remover and to avoid the oily ones. I was also advised to take fish oil, although I don’t think that’s helped. Because they were so bothersome ( I needed oral antibiotics to clear) I started avoiding eye liner. Good luck!
Pippapot I have PV and do therapeutic phlebotomies and take aspirin. When I was first diagnosed I did have several styes and would get in both eyes. I don't wear any makeup and had never been prone to them in the past. I used hot compresses and Occuvite wipes to get rid of them. Eventually I stopped getting them and have not had one in about 2 years.
Never thought about it being related to my PV. Now that you are mentioning it, I do wonder if it did have to do with inflammation and somehow cleared once I started on the aspirin and phlebotomies to get my numbers lower. I never did mention it to the dr.s because I had too many other symptoms to deal with at the time.
I hope you are able to figure out the root cause and get rid of them and not have them return.
I have suffered with dry eyes which did lead to styes.
Saw ophthalmologist & was recommended;
Applying a heat pad over the eyes. (Heats up in microwave)
Followed by cleaning eyes with eye wipes.
I do this each morning.
Both above are available from chemist (I went to boots) without prescription. I haven’t suffered from styes since.👍
I have ET and I have experienced styes on one eye. I was told by optometrist it was due to dry eyes and to get a preservative free drop. Also, to wash my eyelids each day with no tear baby shampoo. I believe it may be due to Hydroxyurea because it makes my skin dry as well. So, perhaps not directly related to ET but perhaps treatment of.
Thank you all, I will give your recommendations a try.
Hi Pippapot,Check with a good ophtalmologiste,the lump like a sty «on my lower left eyelid was in fact a carcinoma,I had a good surgeon to remove it,unfortunately the day of my op the hospitals closed here due to Covid.By the time I had my op the thing had grown & was very sore.So op was much more than hoped for requiring skin grafts.My surgeon was a very famous one in Fr & did a good job ,but he warned me of carcinoma anywhere with our meds & sunlight .So best to get a good ophtalmologiste not just a basic spec sévères or similar.Good Luck.
I would definitely check that out with a good ophthalmologist. Mine turned out to be basal cell carcinoma. In the last 2 1/2 months, I’ve had three eye surgeries. My lower eyelid had to be removed and my eye was sealed shut for 6 weeks. The eye was opened up 2 weeks ago and looks fairly normal now except I have no eyelashes on the bottom of my left eye.
Keep an eye on your feet!!
Can people with ET get pregnant? Are there any specific risks?
Interferon or not???
Burning sensation 
Headaches/joint pains worsening? 
