At last I know.: Spoke to the doctor today and at... - MPN Voice

MPN Voice

10,998 members15,378 posts

At last I know.

mag123ben profile image
4 Replies

Spoke to the doctor today and at last I know I have ET .I have fibromyalgia and the symptoms got my brain thinking it was MF. My white blood cells have been raised for years, kept being given iron tablets. Infections all the time. But my husband died in 2019 and I moved in with my daughter. Her Dr. Took me of 7 different pain killers and said I was like a zombie, didn't know what day it was. With hiatus hernia and other problems made me have an MOT of my body. Now I have blood cancer but know what day it is. Took sometime to get here, but here I am. I know what is wrong.

Written by
mag123ben profile image
mag123ben
To view profiles and participate in discussions please or .
Read more about...
4 Replies
Cat1001954 profile image
Cat1001954

so glad you are sorted good luck x

Spanelmad profile image
Spanelmad

Well done on coming off the pain meds I know from experience this is not an easy thing to do.Glad you've found the forum ,welcome.

Meatloaf9 profile image
Meatloaf9

Glad you are getting your medical issues sorted out. Don't be afraid to ask any questions on this forum and someone will probably have had experience with the same issue. Remember that what you hear on this forum is not a substitute for expert medical advice from a hematologist or MPN specialist. Best to you going forward.

brightlys profile image
brightlys

Welcome to the MPN club! I'm glad you at least have some answers for the blood counts. If you're able to do so, try to get connected with an MPN specialist. It can help to be treated by someone who specializes in these rare diseases.

Not what you're looking for?

You may also like...

Some results, at last

I had some blood sent for Next Generation Sequencing back in March, I’ve been waiting for the...
lizzziep profile image

Surprised at results. An update.

My dear friends. Just sharing my update. So I started 6 weeks ago taking Inteferon my first...

Review of tablets at GP surgery

Well here I go again folks. Had to attended my GP surgery for a review of my tablets before they...
Superwoman profile image

I tested positive for the JAK2 mutation

I am in such a bad state of mind now and I don’t know what to do. A CBC blood test a few months...
Jdb123 profile image

Last update (at least for a while)

I saw the NHS consultant on Tuesday. Apparently anaemia and blood clotting issues are not dealt...

Moderation team

Debinha profile image
DebinhaAdministrator
Mazcd profile image
MazcdPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.