Spoke to the doctor today and at last I know I have ET .I have fibromyalgia and the symptoms got my brain thinking it was MF. My white blood cells have been raised for years, kept being given iron tablets. Infections all the time. But my husband died in 2019 and I moved in with my daughter. Her Dr. Took me of 7 different pain killers and said I was like a zombie, didn't know what day it was. With hiatus hernia and other problems made me have an MOT of my body. Now I have blood cancer but know what day it is. Took sometime to get here, but here I am. I know what is wrong.
At last I know.: Spoke to the doctor today and at... - MPN Voice
At last I know.
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mag123ben
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so glad you are sorted good luck x
Well done on coming off the pain meds I know from experience this is not an easy thing to do.Glad you've found the forum ,welcome.
Glad you are getting your medical issues sorted out. Don't be afraid to ask any questions on this forum and someone will probably have had experience with the same issue. Remember that what you hear on this forum is not a substitute for expert medical advice from a hematologist or MPN specialist. Best to you going forward.
Welcome to the MPN club! I'm glad you at least have some answers for the blood counts. If you're able to do so, try to get connected with an MPN specialist. It can help to be treated by someone who specializes in these rare diseases.
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