Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for July 2023

Changes in my labwork

I was diagnosed with jak2+ ET in March 2023 (though BMB report said they couldn’t rule out pre-fibrotic MF?) My hematologist immediately went on a 3-month...

I was diagnosed with jak2+ ET in March 2023 (though BMB report said they couldn’...

•10 months ago

Besremi and thyroid

just seeing if anyone developed hypothyroidism after starting interferon. I know this can happen and can be a common occurrence with alpha or even beta...

just seeing if anyone developed hypothyroidism after starting interferon. I kno...

•10 months ago

Hydroxycarbamide/ Intestinal Problems

Hello my friends. Just a question, has anyone taking Hydroxy suffered inflammation of the colon? I’ve been on HU for 5 years and tolerated it fairly well....

Hello my friends. Just a question, has anyone taking Hydroxy suffered inflamma...

•10 months ago

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Due to start interferon

Hello, I haven’t posted in over 2 years but have been following the posts and great advice and support given. I was diagnosed with PV in Dec 2020 aged 41. I...

Hello, I haven’t posted in over 2 years but have been following the posts and gr...

•10 months ago

Sunshine & Skin Rash

Hi all, Thank you very much to everyone that replied to me with your help and advice on the rash I encountered on my holiday. I apologise for not replying...

Hi all, Thank you very much to everyone that replied to me with your help and ...

•10 months ago

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Cervical screening positive for HPV

Hi, I am ET triple negative 7+ years, have recently changed from Hydroxy to Interferon 90mcg every two weeks, I have just had my results back from a cervical...

Hi, I am ET triple negative 7+ years, have recently changed from Hydroxy to Inte...

•10 months ago

Possible Micro clot in ankle

hi all. Recently in ED 2 days ago, with severe redness, swelling, heat and excruciating pain in medial left ankle with a possible blood clot. Repeat of same...

hi all. Recently in ED 2 days ago, with severe redness, swelling, heat and excru...

•10 months ago

Anyone try Methylene Blue?

Hi everyone - I'm a 66 year old male, diagnosed with E.T. (Jak2) 2 years ago with platelets around 1.6 M. I was experiencing tennis ball sized Hematoma's...

Hi everyone - I'm a 66 year old male, diagnosed with E.T. (Jak2) 2 years ago wi...

•10 months ago

4000km + Bresremi Odyssee !!

A surefire way to travel for 4,5 weeks with Besremi! June 20th: did my injection Pen 1 - 50mcg and Pen 2 - 150mcg. (100mcg left over), 650km drive to Padua...

A surefire way to travel for 4,5 weeks with Besremi! June 20th: did my inject...

•10 months ago

Date for SCT

Hello, I’ve now had a date for my SCT, provided my heart scan is ok & my donor & myself are both well, I go into hospital on the 6th July & have the...

Hello, I’ve now had a date for my SCT, provided my heart scan is ok & my donor ...

•10 months ago

PE with ET

Hello , hope everyone is keeping well. I am recently been feeling well and tolerating Pegasys for few months month . This has improved my quality of life an...

Hello , hope everyone is keeping well. I am recently been feeling well and to...

•10 months ago

Travel insurance

Hello all I was diagnosed with ET in 2015 and haven’t travelled abroad since. Is it easy to get travel insurance with an MPN? Does anyone have any...

Hello all I was diagnosed with ET in 2015 and haven’t travelled abroad since. ...

•10 months ago

Stopping Hydrea

The country I am in has a nationwide supply problem with Hydrea and I am about run out. I am on 2 x 500mg a day. How long does it take for your platelets to...

The country I am in has a nationwide supply problem with Hydrea and I am about r...

•10 months ago

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