Travel insurance: Hello all I was diagnosed with... - MPN Voice

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Travel insurance

JaynieQ profile image
19 Replies

Hello all

I was diagnosed with ET in 2015 and haven’t travelled abroad since. Is it easy to get travel insurance with an MPN? Does anyone have any recommendations for companies who offer policies to those with rare conditions? I’ll be travelling within Europe.

Many thanks for any advice

Best wishes

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JaynieQ profile image
JaynieQ
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19 Replies
Cat_lady52 profile image
Cat_lady52

We (husband and I) currently use insurefor.com. I've (F 52) got high blood pressure (on two different tablets) and ET ( only on Asprin) good rates.

Trueblue8 profile image
Trueblue8

Hi, I've recently used Staysure and they were good and competitively priced. Ian

Sivasi profile image
Sivasi

HiI'm over 50 with ET and I use Saga. The only question they ask is whether you've ever had blood clots. Otherwise no problems. I've been with them for several years now

nbrb profile image
nbrb

I use Multitrip year-round, premium worldwide plan, with no issues, for the past 5 years. On every renewal, I have to call to an e-doc, which just asks if there was any clot issues, which there wasn't. Then, I pay around 30 euro extra and add the reference number to the policy.

pussycatwillow profile image
pussycatwillow

I do not recommend Staysure or Avanti. They take months to pay out claims! Beware of any travel insurance policies that are administered by Ergo Travel and claims by Davies Group.

AndyT profile image
AndyT

I’ve used Staysure for many years now - never had to claim but always found it easy to get cover for my ET and other pre-existing conditions and annual premium seems reasonable compared to some other companies

pussycatwillow profile image
pussycatwillow in reply toAndyT

Staysure do offer very competitive rates.

However I had the misfortune to make a medical claim. I had to pay my hospital bill of £8000 myself. I was fortunate that I had a high credit card limit, some people may not be in a position to have that sort of funding. It took 4 months and many phone calls/emails to be reimbursed.

Staysure pass the buck to the administrators Ergo Travel, they pass the buck to Davies Group.

I took the case to the Financial Ombudsman and received compensation. Read the reviews on Trust Pilot, I hope you never have to make a claim.

MoNut profile image
MoNut

I have had ET since 1992 (31 years). I have always included this on my travel insurance and have always been given cover. I have other things covered on might travel insurance as well.

MAP44 profile image
MAP44 in reply toMoNut

How wonderful to read that you have had ET for over 30 years with no progression, managing very well and out living your best life. ❤️ ❤️

Lots of hope to many who read this. 🌺🌼🌸

MoNut profile image
MoNut in reply toMAP44

thank you so much for your kind words I was 47 when I started with ET and I’m now 78. I can’t believe how fast the years have gone and I am so grateful for the care I’ve had over the years. Good luck and good health to you and everyone.

Oscarsboy profile image
Oscarsboy

Hi Jaynie. I have my travel insurance with Marks And Spencer. When I was diagnosed I contacted them as ET was not listed on their "acceptance criteria". It was not a problem. They added at no extra cost. I now get an annual reminder to confirm there are no changes In my condition. Hope this helps.

Wyebird profile image
Wyebird

it’s a nightmare if you have other conditions also.

Last year I had puffin.

I’ve had in the past good to go and medical 4 you.

Exeter21 profile image
Exeter21

Staysure is good for me always used with ET 👍

Threelions profile image
Threelions

Hi

To be honest I was surprised that travel policies weren’t to loaded for ET.

I still go on the comparison sites & then add the condition before comparing.

I’ve found that still to be the best way to get the best value cover.

Have a lovely time when you go.

YBSx profile image
YBSx

Hello

I’m ET jak2. I am insurances through Barclays Bank. I pay £12 a month for their Travel pack this cover all the family for Travel abroad UK and RAC. I haven’t traveled abroad since I was diagnosed in 2020. I phoned them last week to declare my Illness and medication due to booking a holiday abroad. The only questions they asked was, have I had any blood clots, which I haven’t

I was expecting to pay more or to be told they wouldn’t insure me and to my surprise no all is good, no extra cost and fully insured.

Good luck with your search

JaynieQ profile image
JaynieQ

Thanks everyone! Lots to go at there! I thought it might be impossible/difficult/expensive to get cover and I’m pleasantly surprised you’ve all told me it’s not 🥰

KentBee profile image
KentBee

Hi, I recently got back from 12 days in Canada. I have JAK2POSITIVE ET and am over 70. The cheapest insurance I could find was with the P.O. however it was still over £600.

Nikon7 profile image
Nikon7

I’m going to be traveling from US to Italy and am looking at World Nomads for insurance. My partner used them for a 6 week cycling trip. They have medical evacuation & repatriation coverage, trip cancellation, overseas dental . . . Just enter where you’re going and your dates to get a quote. Go have fun!

Nikon7 profile image
Nikon7

Also check out Squaremouth where there are many companies to compare.

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