PE with ET: Hello , hope everyone is keeping well... - MPN Voice

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PE with ET

Afya23 profile image
13 Replies

Hello , hope everyone is keeping well.

I am recently been feeling well and tolerating Pegasys for few months month . This has improved my quality of life an also my platelets are normal.

Unfortunately I had a rough week with right rib / abdomen pain which then worsened and left me Breathless , tachycardia and nauseated.

I do experience a lot of intermittent chest /left arm pains. I also experience intermittent Short of breath sometimes when I am sleeping and had previously been put down as panic attacks.

Anyway I ended up in ED and had a CT PA with showed I have a small PE . Not what I expected but I am happy am on treatment for it . And hoping it will dissolve and never reoccur again .

Now I am wondering if might sound crazy to ask for a heart check up to see if I have been having angina instead of putting it down as bone pain.

Thanks 🙏🏿.

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Afya23 profile image
Afya23
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13 Replies
Hopetohelp profile image
Hopetohelp

My haematologist offered me a heart scan so you will probably get one if you ask for it. Can I ask what a PE is?

Afya23 profile image
Afya23 in reply to Hopetohelp

Hi Hope to help

It’s Pulmonary embolism. It’s a clot in my lungs. Thanks.

Hopetohelp profile image
Hopetohelp in reply to Afya23

thanks

hunter5582 profile image
hunter5582

I would think a cardiac screening would be a prudent course of action. We are at risk and with a history of recent PE, a thorough cardiac evaluation would be a very good idea.

Afya23 profile image
Afya23

Thanks Hunter. I thought so too.

Wyebird profile image
Wyebird

just googled PE.

So glad you are ok. Do tell your heamo team.

Afya23 profile image
Afya23 in reply to Wyebird

Hi Wyebird

Thankyou. I have informed them.

Meatloaf9 profile image
Meatloaf9

I would think that a cardiac evaluation would be in order with your symptoms. I don't know of any down sides of having a work up. Hope you can access an evaluation. Best to you.

Afya23 profile image
Afya23 in reply to Meatloaf9

Hello Meatloaf9

Thanks. Going for review next week and will definitely request one.

MAP44 profile image
MAP44

Happy you feel better.

We all need to be aware of the signs of stroke, heart attack and aneurism. Obviously not only for our health and disease but others around us.

Hope you heal quickly. 🍻😎❤️

Afya23 profile image
Afya23 in reply to MAP44

Hey MAP44

Thanks for your kind words . Am now on blood thinners so hoping it will dissolve soon . And is true we need to be aware of the risks facing us . It threw me off but getting there! 🍻

MAP44 profile image
MAP44

Your Doctors will watch you more closely which is always best when discovering an issue and beginning a new treatment. I am sure you will enjoy the positive medical attention.

When I was diagnosed my Specialist said “your body has a secret, it can make blood clots, but now we know it too.” ❤️😎🍻

Afya23 profile image
Afya23 in reply to MAP44

You’ve made me chuffed to bits .. big secret it is . Looking forward this journey too. Keep on keeping on! Have a great evening! 🍻 ❤️

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