Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for November 2018

Side effects of Hydroxycarbamide

I have Polycythemia diagnosed March 2017. Platelets not extremely high 600. Haematologist put me on 500 mg Hydroxycarbamide. Platelets went down to 300....

I have Polycythemia diagnosed March 2017. Platelets not extremely high 600. Haem...

•6 years ago

Anti-inflammatory options

So, if one is not to take ibuprofen for anti-inflammation relief (sports injury), because of being on hydroxyurea for ET, any ideas what an alternative might...

So, if one is not to take ibuprofen for anti-inflammation relief (sports injury)...

•6 years ago

hydroxyurea & anger

Just a heads up for anyone starting hydroxy to look out for the anger. Don't know if this was just me but I had horrible anger for the first two weeks when I...

Just a heads up for anyone starting hydroxy to look out for the anger. Don't kn...

•6 years ago

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How will et effect me with age

I was diagnosed with et at 28. My platelets are averaging 800k. I am currently just taking asprin. I just turned 30 and it has me wondering what to expect as I...

I was diagnosed with et at 28. My platelets are averaging 800k. I am currently j...

•6 years ago

MF transplant update - days +21 to +40

Hi All, It has been 20 days since I was discharged from the BMT unit. It has been lovely to be home. My new mantra is every day at home is a good day. Apart...

Hi All, It has been 20 days since I was discharged from the BMT unit. It has bee...

•6 years ago

Polysythemia rubra vera

Hi,this is usman I don't post mails to this group that regular, i,m a known patient of polycythemia rubra vera I have been on hydrya for quite some time but...

Hi,this is usman I don't post mails to this group that regular, i,m a known pati...

•6 years ago

Ropeg 3 year trial results

Good results, encouraging that reduces other mutation ABs as well as JAK2. As someone with TET2, I’m hoping/assuming this result applies to Pegasys as well....

Good results, encouraging that reduces other mutation ABs as well as JAK2. As so...

•6 years ago

Itchy Scalp with Anagrelide

Wonder if anyone is having similar problems....my scalp is so itchy it keeps me awake at night...and drives me demented in the daytime....practically tearing...

Wonder if anyone is having similar problems....my scalp is so itchy it keeps me ...

•6 years ago

Does anyone else have another blood cancer as well as an MPN?

Hi. I’m now nearly two years post diagnosis with MF, and I also have CLL. Chronic lymph.. leukemia ( can never remember, spell or pronounce the L in the...

Hi. I’m now nearly two years post diagnosis with MF, and I also have CLL. Chroni...

Rachelthepotter

•6 years ago

fluoride for teeth when on hydroxyurea?

My dentist has recommended that I start using fluoride gel trays for my teeth to protect them while taking the hydroxyurea. Has anyone heard about this? I...

My dentist has recommended that I start using fluoride gel trays for my teeth to...

•6 years ago

Et

Hi is there anyone on hydroxi and taking cannabis oil would I be ok to do so ? .

Hi is there anyone on hydroxi and taking cannabis oil would I be ok to do so ? ....

•6 years ago

Raised LDH with PV

Hi friends, I’m still learning here as I was diagnosed 3 months ago. So in August 2018 I was diagnosed with PV at the age of 32 and my recent blood test...

Hi friends, I’m still learning here as I was diagnosed 3 months ago. So in Augu...

•6 years ago

Specialist in Baltimore/Washington area

Hi all, I wanted to reach out and see if anyone has a particular recommendation for the Baltimore/Washington metro area. It seems that the general consensus...

Hi all, I wanted to reach out and see if anyone has a particular recommendation ...

•6 years ago

painful legs even at night

I was told I have PV in Jan just on aspirin and blood test result venesection, I am having very painful legs even in bed a night does anybody else have this...

I was told I have PV in Jan just on aspirin and blood test result venesection, ...

•6 years ago

Claiming on Critical Illness Cover

I know that this subject has been discussed in the past on the forum but felt it worth raising again with details of my own recent experience. I work in...

I know that this subject has been discussed in the past on the forum but felt it...

•6 years ago

Update on problems at work

Well it's been about 5 months since I posted about my problems at work. To refresh my manager pulled me in for time off and to tell me I wasn't entitled to...

Well it's been about 5 months since I posted about my problems at work. To refre...

•6 years ago

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