So, if one is not to take ibuprofen for anti-inflammation relief (sports injury), because of being on hydroxyurea for ET, any ideas what an alternative might be? Acetaminophen is fine as a pain reliever but it’s not an anti-inflam.
Hi , I feel your pain x
I’m also having problems with Arthritis very painful at times
I would like something other than Codeine, as it’s not ideal ,
Sorry I’m not much help .
Hope you get some answers.
Thanks Pam. Maybe someone will weigh in here with an alternative and we will all get some answers!
Hi, I have lots of osteoarthritis and my stomach doesn't tolerate any anti inflammatory meds. I have tramadol at night which helps sleep and they do work. Through the day I take paracetamol which isn't always enough and if I'm not driving I'll take tramadol during the day. As you say not ideal but in my case I end up with bad stomach pains if I do take anti inflammatories so it's not worth it - even gel affects me. Kindest regards Aime xx ps sorry I'm not much help. I forgot to say it's important to catch pain early before escalates, otherwise I find paracetamol no help.xx
Thanks Aime. I can tolerate anti-inflams just fine, but the haemo said I shouldn’t take them because I’m taking hydroxyurea. So I’m looking for something that would work like an anti-inflammatory to deal with occasional muscle-related sports injuries.
Hi Wiley Where are you located? I am in Sydney and often have bad migraines Taking panadeine with codeine 14mg Asked hemo about 600ml aspirins and/or ibuprofen instead and he said no problems I have double checked as I am on hydrea and he said no problem
I’m in Canada - west coast. You’ve got a suspenseful non-ending to your post! A neurologist told me several years ago to avoid codeine-based meds for migraines because a person could end up with “rebound” headaches, so I’m very interested in the ending to your story .....
I have stopped codeine and am trying 600ml aspirin dissolved in glass of water. So far seems to work as am not getting secondary migraine. Of course taking 600ml aspirin often is a bit risky with ET. I was getting migraines mostly Sunday evening almost weekly. I'll try ibuprofen next time
For anti inflammatory benefits I only knownof stretching & ice. Not as helpful as NSAIDS. Some with arthritis have found CBD oil helpful but I don’t have any info on that. It’s been discussed on here. Good luck. Katie
Thanks Katie. You’re right - stretching and ice aren’t as good. I’m going to look into low level laser therapy and see what that might do.
That’s interesting. No one has mentioned not taking NSAIDs whilst on Hydroxy. However, I don’t take Ibuprofen in any event as I’m on daily aspirin. Which, in the only literature I can see that mentions Hydroxy and NASIDs (seems fine elsewhere), is also contraindicated in terms of an increase risk of bleeding! I imagine it’s all a question of dosage and risk / benefit.
I think it does have to do with bleeding risk. I’m going to re-check with the haemo and maybe an occasional ibuprofen might be okay. As you say, it’s likely related to dosage and risk/benefit.
I think it’s if you’re on blood thinners. Sry I wasn’t clear. Katie
I ended up in hospital after taking ibubrofen for sciatica. Had a tremendous nose bleed which went on for several hours. It had to be cauterized. I won't touch it now
I take it. I’m on 17 hydroxi a week plus 7 anagrelide.
Well that’s good to know - thanks, Wyebird!
Quick follow up, Wyebird - do you also take clopidogrel? I do.
I’ve read other replies just read them all carefully. We all react to simple medical issues differently. Maybe I’m lucky
A ketogenic diet is very anti-inflammatory and helps many people with arthritis who don’t have the added complication of our additional issues. It does take some time for the anti-inflammatory effects to take effect - several months. I have no aches or pains since going keto a year ago - and I’ve lost 10kg (bonus).
My husband takes hydroxyurea and recently fell down some stairs and injured his back, the only pain relief that eased it was Neurofen (an anti-inflammatory). His doctor, haematologist, and senior pharmacist all said the same thing and that is: take it in moderation i.e. one in the morning and one at night - take an alternative non-inflammatory if needed for the in-between hours, and stop taking it completely when the initial awfullness goes away..... works for him.
Thanks for this - that’s really good to know. I sure hope the “initial awfulness” goes away soon for your husband.
I use homeopathic remedy Arnica 30c and also arnica gel to rub on effective areas.
I hadn’t thought of that - thanks for the tip.
Hi..totally hear you about anti inflammatory. My dr just gave me a topical cream of diclophenec (spelling ) for I cannot take the pill. It does help with the fingers and hands. I also carry a roll on of Aspercreame which helps while out and about.
Hope you are feeling better.
Good tip re the topical cream; and I’d forgotten all about Aspercream. That might be helpful too. Thanks for the reminder Sheryl.
Hi this is a question I recently asked a pharmacist.as I had pulled my back.told her about the hydrea and 75 mgs of aspirin daily.her advice was take in moderation and no more than 600 mgs in a day.The ones I take are 342 mgs each pill and I took 1 or 2 a day.Remember to take with food.to help with any tummy upset. There are many instances where only ibuprofen will help certainly with inflammation.Hope you manage to get some relief. Marilyn
That’s super helpful Marilyn! Thank you.
I must admit I do take the odd ibuprofen, albeit rarely. If I have a badly aching joint, it really is the only thing that works.
Me too Mary, I don’t think occasional use hurts especially if taken with food.
You’re so right. That’s the route I’m going to follow. Moderation, that’s the ticket!
Turmeric may help. I bought powdered spice at the supermarket and have some in kefir every morning.
It may be helping.
Losing 3 stone in weight, with a low carb healthy fat way of eating, cutting out sugar, taking up Tai Chi, Pilates, Yoga, swimming, gentle weight training and walking may also have helped.
I feel a lot better.
A hot water bottle filled with iced water gave some relief to the pain of a prolapsed disc.
Wow - that's quite a lifestyle change! Good for you, and I'm sure it's all contributed to your feeling better. Keep it up!
Thank you WileyFrench
CBD oil works for me and my back 👍
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