I have Polycythemia diagnosed March 2017. Platelets not extremely high 600. Haematologist put me on 500 mg Hydroxycarbamide. Platelets went down to 300. However side effects of Hydroxycarbamide were Horrendous. Breathlessness nausia light-headedness and the fatigue was so bad I didn't want to wake up. However haematologist said these symptoms had nothing to do with hydroxycarbamide or polycythemia and referred me back to my GP who disagreed with her. However I felt so ill and desperate I have stopped taking the hydroxycarbamide now into my Third week. All symptoms gone and I feel great. Best I've felt for ages. Did 40 miles on my bike yesterday!! My question is has anyone else taken this drastic action and what should I do now. How serious is it to stop taking the dreaded hydroxycarbamide?!!