I have ET and am on Hydroxycarbamide - 1000 mg per day for 5 days and 1500 mg per day for 2 days. I've been to the hospital today and my count was down again, to 280 from 370 six weeks ago. I've been told to stay on that dosage and go back in 10 weeks, however, I am worried that the counts will continue going downwards and go too far the other way, when I mentioned this the specialist nurse said that would not happen. But my levels have gone down each time since I have been on this dosage, (originally they were about 1160) am I wrong to be worried that my platelet levels will fall too far?
Last edited by lizzziep
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