Relatives with MPD: Do you have any blood... - MPN Voice

MPN Voice

10,445 members14,398 posts

Relatives with MPD

Mazcd profile image
MazcdPartnerMPNVoice
6 Replies

Do you have any blood relatives with PV, ET, or MF?

Written by
Mazcd profile image
Mazcd
Partner
To view profiles and participate in discussions please or .
6 Replies
Dingwall1979 profile image
Dingwall1979

No however my mum has rheumatoid arthritis which my hemotologist thought was interesting as both immune disorders where your body is attacking itself - however he did say he did not think I had this genetically as I don't have the jak2 mutation with my et - seems to be no one knows how we have got these mpns and still looking at possible exposure to radiations/environment etc

Whampam profile image
Whampam in reply to Dingwall1979

Strange, I would referred to a consultant on the suspicion that I had rheumatoid arthritis 8 years before my ET surfaced. It was like a ring road when I went - no one knew what I had, I had itching, body aches etc - now I know it was ET!!

I have just found out that my Uncle (on my Father's side) had Polycythemia. He was a publican and very heavy smoker. His treatment was regular Venesections. He died aged 83 of Lung Cancer

CADLondon profile image
CADLondon

Not a blood relative, but my husband has myelofibrosis. His sister has poly myalgia rheumatica.

Gallery123 profile image
Gallery123

interesting my mother had poly myalgia rheumatica and has other immunological problems, my Father apparently died of AML.

CADLondon profile image
CADLondon in reply to Gallery123

It does make you wonder doesn't it. Maybe if someone from MPD voice is reading this they can offer some expert advice as to whether these things are genetic. My husband is JAK positive if that makes a difference. I know his nieces and nephews would be interested to know.

You may also like...

Living with MPD's Day/Forums

Are you taking medication for your MPD?

you consider that it is efficient? Do you have to keep changing the dose depending on your blood...

Concerns on useing hair dye with a mPD

if its okay to still put colour on my roots , i have been doing this for 30 years since going grey,...

How many mpd patients in uk?

by researching about mpd,on cancer research site have so far found it very helpful and informative...

Anyone had any implants before MPD