Relatives with MPD: Do you have any blood... - MPN Voice

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Relatives with MPD

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Do you have any blood relatives with PV, ET, or MF?

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Dingwall1979 profile image
Dingwall1979

No however my mum has rheumatoid arthritis which my hemotologist thought was interesting as both immune disorders where your body is attacking itself - however he did say he did not think I had this genetically as I don't have the jak2 mutation with my et - seems to be no one knows how we have got these mpns and still looking at possible exposure to radiations/environment etc

Pam81- profile image
Pam81- in reply toDingwall1979

Strange, I would referred to a consultant on the suspicion that I had rheumatoid arthritis 8 years before my ET surfaced. It was like a ring road when I went - no one knew what I had, I had itching, body aches etc - now I know it was ET!!

I have just found out that my Uncle (on my Father's side) had Polycythemia. He was a publican and very heavy smoker. His treatment was regular Venesections. He died aged 83 of Lung Cancer

CADLondon profile image
CADLondon

Not a blood relative, but my husband has myelofibrosis. His sister has poly myalgia rheumatica.

Gallery123 profile image
Gallery123

interesting my mother had poly myalgia rheumatica and has other immunological problems, my Father apparently died of AML.

CADLondon profile image
CADLondon in reply toGallery123

It does make you wonder doesn't it. Maybe if someone from MPD voice is reading this they can offer some expert advice as to whether these things are genetic. My husband is JAK positive if that makes a difference. I know his nieces and nephews would be interested to know.

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