What topics or questions would you like to discu... - MPN Voice

MPN Voice

10,784 members14,980 posts

What topics or questions would you like to discuss or learn about regarding MPDs?

Mazcd profile image
MazcdPartnerMPNVoice
3 Replies

Let us know what you want to talk about within this community, post your questions, thoughts and ideas.

Written by
Mazcd profile image
Mazcd
Partner
To view profiles and participate in discussions please or .
3 Replies
Gallery123 profile image
Gallery123

Potential effects of NHS reforms on MPD hospital services. Ie I am seen by my consultant every three months I hope this level of contact will continue?

Mazcd profile image
MazcdPartnerMPNVoice in reply to Gallery123

Let's hope that the reforms don't have too much effect on services for the MPD community, this is something I think that will worry quite a lot of people.

Sorry I'm not aware of what these reforms are... I've kept my head in the sand until recently!! After 3 years with ET, my condition is quite stable and I have a 'telephone consultation' with my Consultant and get regular bloods and Meds from my GP. It seems to be working really well, obviously if I have any problems I know that I can contact my Consultant at any time.

Not what you're looking for?

You may also like...

What would you do?

Keep your fingers crossed for me . I have just posted my final module of my diploma course in...

Questions about switching from hydroxyurea to interferon

I am ET Jak 2 positive, age 71. I have been taking a low-dose, 500 mg of hydroxyurea every three...

A follow up to my post about switching from hydroxyurea to interferon. Questions about switching to besremi or anagrelide.

I have ET jak 2 positive and can no longer tolerate hydroxyurea. I had a phone consultation with my...

Happy Christmas and... a plea for help regarding gout or something like it?!

Dear All, First a Happy Christmas to everyone. Thank you for your help over the last few months...

Bit nervous about what to do.

I'm still confused about what to do with this COVID 19 virus,should I self isolate for 14 days...