Wolfson Centre: Hi all, has anyone been... - Functional Neurol...

Functional Neurological Disorder - FND Hope

5,652 members2,948 posts

Wolfson Centre

Dot50 profile image
9 Replies

Hi all, has anyone been to the Wolfson Centre for inpatient intensive physio? I've been referred there by Prof Edwards. I was told that because Glenn Nielsen's waiting list was so long they have set up another centre at St Mary's hospital , as a part of St George's. Hopefully this means I won't have to wait too much longer for treatment. I'd be very interested to hear anyone's experience.

Written by
Dot50 profile image
Dot50
To view profiles and participate in discussions please or .
Read more about...
9 Replies
Cookiecc67 profile image
Cookiecc67

Hi I have not had the treatment at the Wolfson centre but had the treatment with his team and it changed my life. I can now walk without sticks and plan for a future

Dot50 profile image
Dot50 in reply to Cookiecc67

Lovely news the treatment was so positive for you! Best of luck with your new future. Thanks for replying.

Dot x

Cookiecc67 profile image
Cookiecc67 in reply to Dot50

Thanks.

I hope yours goes as well.

Col

redhead63 profile image
redhead63 in reply to Cookiecc67

Hi:

Can you tell me what did they do for you? That’s great news that you can walk without any devices

Cookiecc67 profile image
Cookiecc67 in reply to redhead63

They essentially broke my walking down and built it up using mirrors and treadmills. It was 121 work and intense. Deceptively simple but so far do good. I can walk a a couple of miles albeit not as fast as I could. I even been able to ride a bike and can swim again.

Dot50 profile image
Dot50 in reply to Cookiecc67

Wow, that is fantastic! The thought of being able to walk two miles, I'd be so glad to do that again, after years of stop-start limping along. Can't overestimate the effect of hearing positive results like yours, renews hope that something can be done. Thank you!

Don't forget Prof Mark Edwards doing webinar tonight at 9 pm if you want to see him.

Best of luck with your progress!

EnglishIslander profile image
EnglishIslanderFND HopeVolunteer

4 of us there now. What would you like to know other than come join us it's wonderful!!! :-)

I would add, the Wolfson centre is a 12 week program with a full multidisciplinary team working with you to achieve the optimum result for YOU.

Dot50 profile image
Dot50

Wow! That sounds amazing. Not sure if I will be there for 12 weeks, I was told last September that it would be a 5 day intensive physio programme. I'll happily accept whatever is offered. Just waiting to hear when I'll be called for an assessment. I hope it goes well for you all.

Cookiecc67 profile image
Cookiecc67

It has been amazing. Like you I never really heard positive stories so I happy to share mine.

You may also like...

Rosa Burden Centre

has recently referred me to the Rosa Burden Centre in Bristol and I wondered if anyone has any...

The NHS don't make this easy..

with the Walton Centre here in Liverpool, which specialises in neurology. Having been investigated...

Influmation of my pancrious and gallstones

So as you all know I haven't been well of late so a few weeks ago went to see GP in regards to...

FND - When to Inform your Employer?

what is the right time; has anyone been discriminated against, or does anyone have any accounts of...

Neurologist in London - recommendations?

there, I am getting quite frustrated by having to wait months for my next NHS appointment and very...