Looking for Interviews!

[acheckle]

Hi everyone! I am looking for individuals living with MS that would be willing to share their story! I am a senior at Purdue University in Product Design. I am working with an accredited medical company this semester to develop a line of products that might help improve the quality of life for people living and working with MS. I’m pretty unfamiliar with MS, I would love some insight from this community to help us develop products. Anything shared will remain anonymous, no need to worry about that. If you are open to participating in a short interview, please send me a message! I’d love to connect! Any information would be much appreciated!

[bulldogman]

I would be willing to participate in your study.

[KindraD1993]

i am willing to help you

[JJinMD]

I would be willing to help.

[Kreation88]

I would be willing to talk. I’ve had MS since 2006 and lost vision in my left eye in 2023.

[Moebutterfly83 in reply to Kreation88]

Hello sorry to hear about the vision same thing happened to me but I ended up getting my vision back .. did your vision come back ?

[falalalala]

I hope that medical company compensates you fairly for your ideas.

[StacyHayward]

I’ll help!

[Amore55]

I will participate.

[lbenmaor]

I am willing to help. Leslie

[Wheelof]

I would love to share my story. I found out I have ppms 3.5 years ago. My story is very unusual. Before I finally came to accept the new me,I almost gave up. I decided my story wasn't finished. Since then Instead of progressing my ms is regressing and I've been slowly relearning and I taught myself new things. For example I can cook. I even checked off going to Hawaii which was on my bucket list since childhood. Today I'm in better physical shape than I've been in 30 years. In summation I actually thank God for blessing me with ppms. Infact it possibly saved my life. Their is much more to my story but nobody will probably even read this. For those with Ms don't ever give up.

[ewesttx]

Hi, I would be willing help support your endeavor. FM 65 PPMS, diagnosed in 2013 at 55.

Regards,

Eileen

[swiftpoet]

I have had MS since 1972-73 but only found out in 2011. In 2011, I started a support group, Living for a Cure, with about 5000 members. I have heard lots of MS stories. If I can help, be in youch, facebook.com/kitminden/

[Frances_B]

I've lived with MS for well over ten years now and have a fair bit of disability from it. As a older PwMS who has a marketing/ management degree and a lot of life experience (including as a disability advocate) plus a very varied work background in several different industries, my advice would be to forget about developing "...a line of products that might help improve the quality of life for people living and working with MS" and look at creating products that overcome or mitigate various types of impairments for PwD who have all sorts of different diseases/ conditions.

People with conditions/ diseases other than MS can have the same types of impairments/ disabilities that PwMS do, and taking a broader approach is more likely to result in products with wider market appeal, better design features, and greater usefulness to more people. For example, PwMS are not the only people who may have problems with mobility, or hand function, or getting out of bed, or dressing themselves, or who suffer from vision impairments, dizziness, balance issues. With product development you need to start by identifying and then addressing the functional problem/ need - especially as mostly the cause of the impairment is totally irrelevant to the effect it has on an individual's day-to-day functioning.

Sure, talk to PwMS, but avoid getting tangled up in the MS part of it, and focus on the functional impairments, not the disease/s. Have you posted your request for people to contact you in other online places as well where they are dealing with different conditions?(e.g. arthritis, cerebral palsy, ALS, paraplegia, quadriplegia, strokes, amputees etc etc etc)