Are you a member?: One of the best... - My MSAA Community

My MSAA Community

9,483 members21,312 posts

Are you a member?

Corran731 profile image
12 Replies

One of the best decisions I made after being diagnosed with MS was joining iConquerMS which just celebrated its 10th anniversary. If you’re not familiar with it, it’s an organization where MS patients have the opportunity use their voices to contribute, influence, and advocate for MS research that matters to us. Now that I am disabled it means a lot to me to know I am making a difference not only for myself but for everyone in our community.

The reason I’m mentioning it today is if you’re not a member, now would be a great time to get involved. In 2025 there will be a first of its kind clinical trial of a non-pharmacological treatment for MS fatigue. Something most of us struggle with. The trial will be recruiting 2000 people with MS from the iConquerMS community as well as several VA hospitals across the U.S. If successful, this treatment would receive FDA approval meaning it would be covered by Medicare, health insurance, etc. Anyway, if you made it this far thanks for reading and here’s a link for the website if you want to learn more:

iconquerms.org/

Written by
Corran731 profile image
Corran731
To view profiles and participate in discussions please or .
12 Replies
AquaZumbaFan profile image
AquaZumbaFan

Thanks for the information… this sounds like something that I would like to invest some time to understand a little better.

Corran731 profile image
Corran731 in reply toAquaZumbaFan

You’re welcome ☺️

GreatDanekids profile image
GreatDanekids

Thank you,, I will definitely check this out.

Corran731 profile image
Corran731 in reply toGreatDanekids

You’re welcome ☺️

Tazmanian profile image
Tazmanian

Thank you

Corran731 profile image
Corran731 in reply toTazmanian

You’re welcome ☺️

Helpmeup profile image
Helpmeup

Hi Corran731. Thank you so much for sharing this info. Sounds like something I'd be interested in. I will take a look at their website. I know what you mean about feeling like you're making an impact on research. For over twenty years now, I have participated in the NARCOMS (NARCOMS.org) research project and it makes me feel like I am making a difference in the M.S community. Happy holidays to you! 🙂

Corran731 profile image
Corran731

You’re welcome. I’ll have to check out NARCOMS. It looks like it has a lot in common with iConquerMS and the Accelerated Cure Project. Happy holidays to you too❄️🎆

carolek572 profile image
carolek572CommunityAmbassador

I will be checking iConquerMS, Corran731 . Thank you for this information! Joyeux Noel 🎄

Corran731 profile image
Corran731 in reply tocarolek572

De rien! ☺️ Happy Christmas to you too 🎄

JTZES profile image
JTZES

I joined. Thank you.

Corran731 profile image
Corran731 in reply toJTZES

Awesome 😎 Thank you too!

Not what you're looking for?

You may also like...

Research Study on COVID-19 Vaccines in People with MS

For anyone who is interested: iConquerMS, a research community of people with MS supported by the...
johnMSAA profile image
Partner

You look so good, are you fixed?

“YOU” look so good I thought “YOU were sick.” Ever had that statement made to “YOU” by a friend...
RoyceNewton profile image

New Community Member

Hello new friends! I am brand new to your community and I look forward to giving and receiving...
gaylaortega profile image

Post 584 Do you see 7 Jan 2020

"YOU" are not alone. "YOU" may not know us, "YOU" may never meet us, but we have your back as much...
RoyceNewton profile image

MSAA Online Focus Group: Day 1

Welcome to Day 1's question! Thank you for all the interest in this focus group, we look forward to...
HelenHU profile image

Moderation team

See all
johnMSAA profile image
johnMSAAPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.