on Jan 1 2023 I was taken to emergency room. I was barely able to do anything. I short of breath, heart pounding and extremely exhausted. I would be in bed for hour. I was admitted to the hospital for sever anemia. I was given a blood transfusion and intravenous iron. I had an upper and lower gi which was normal.
The combination of MS and anemia has zapped the life out of me. Doctors don’t look at the whole person. I also have heart failure, NASH, pancreatic insufficiency, COPD, Bipolar, depression, anxiety, ect. I am a mess and it’s hard to stay positive when your body wants to stay in bed.
I do not like my gi Dr. And think she’s pulling at straws. I am lucky to have a wonderful care taker three times a week who keeps me going. I have had enough.
Written by
SaraSmile2021
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I believe that the diagnosis of "iron deficiency anemia" is incorrect. What you have is "anemia of chronic disease." You can google it, but here is a short explanation: Anemia of chronic disease happens when you have an autoimmune disease or other chronic illness that causes inflammation. Chronic inflammation can affect your body's ability to use iron needed to make red blood cells. You would be better served by a hematologist rather than a gastroenterologist.
SaraSmile, BettysMom is a doctor. She's probably right in that you need a hematologist. Are you rural? I find that the doctors in my rural area are just not exposed to M.S. patients and seem to have little knowledge of it. Advocate for yourself, friend! Ask around until someone recommends a doctor they like! The MSAA website has a list of doctors in your area. If I ever get to retire, (one day!) I am going one state over to an MS clinic in Birmingham. Prayers for you as you go through this!
As someone who dealt with a complex medical situation all last year, I sympathize with your gripe about doctors not looking at the whole person. I ran into that a lot for months until I was able to find two doctors who said “complicated is what we do” after they heard my whole story. After those two doctors performed a 5 hour major surgery two months ago, I’m on the mend. The other annoying thing I ran into was a couple of doctors who couldn’t admit they were beyond their knowledge and should refer me elsewhere. Such ignorance!
that is a lot to deal with! i'm glad you got treatment in time. i imagine all of this would be depressing, so please keep communicating with us. i always feel better emotionally after visiting this site. & if you don't like your doctor, you have every right to fire them.🤗
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