Has anyone had any experiences with having double incontinence for many years before other symptoms developed (head bobbing, hand movement, sleepiness, lethargy, drooling, swallowing) and MSA was suggested as a possible diagnosis? One neurologist who recently saw my wife disregarded incontinence issues as being relevant because they were long standing. I believe the incontinence issues are worsening and I’m interested in any comments before we see another neurologist.
Kind regards to all.
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Scragger
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my hubby’s early symptoms were continence related so absolutely yes it’s linked. I’m frustrated now as it feels like the dots should have linked much earlier. the MSA Trust web site has info that can be given to any Dr that explained possible symptoms.
I believe this was a very early symptom for me as well. I have found some ways to manage which I’ve discussed in previous comments.
For me, it is as if the signal comes too late for me make it to the ladies in time. It’s been helpful to spend time at home. I try to manage timing through diet, medication and hundreds of kegels per day. I currently have very few accidents but it took a long time to figure it out.
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Mum's journey x
Apomorphine pump; does anyone have any experience?
Might it be MSA? 
Newbie
Does this mean I have MSA?
