Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for August 2021

Myelofibrosis and tingling limbs

Myelofibrosis and tingling limbs I've recently been diagnosed with myelofibrosis having had essential thrombocypomia for over 20 years with no symptoms and...

Myelofibrosis and tingling limbs I've recently been diagnosed with myelofibrosis...

•3 years ago

Other health issue

Hi All , my HU has caused me to have very low sodium for which I take salt tablet twice a day ! I also have been diagnosed with POTS which can be caused by...

Hi All , my HU has caused me to have very low sodium for which I take salt table...

•3 years ago

How to deal with Damage from Hydroxyurea.

I have ET, and have to take Hydroxyurea. It has made my hair fall out, which my Dr. has helped me with. It has caused mouth sores, which I treated myself with...

I have ET, and have to take Hydroxyurea. It has made my hair fall out, which my ...

•3 years ago

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Leaving Pegasys behind

Saw new haematologist in Toulouse ( France)last week. After long discussion doctor’s advice was that I stop taking Pegasys. A decision I think I’d already...

Saw new haematologist in Toulouse ( France)last week. After long discussion doct...

•3 years ago

Weight

I’ve been trying to lose weight although it’s a slow process , about 4-5 pounds a month . I’ve had some small reductions in my platelet count and was...

I’ve been trying to lose weight although it’s a slow process , about 4-5 pounds ...

•3 years ago

ET and Autoimmune disease

Hello! I was diagnosed with ET a month ago following a BMB though it turns out I’ve had highish platelets since 2007. In 2005 I was diagnosed with Hashimoto’s...

Hello! I was diagnosed with ET a month ago following a BMB though it turns out I...

•3 years ago

Meds

Does anyone on hydroxycarbamide suffer from cramp in their feet and calves

Does anyone on hydroxycarbamide suffer from cramp in their feet and calves

•3 years ago

Blood count management in ET

I wanted to know in patients with ET , if they are on hydra , does it affect/suppress their red and white count as well? If the treatment is same for ET and...

I wanted to know in patients with ET , if they are on hydra , does it affect/sup...

•3 years ago

Hydroxycarbamide

Hi folks Can I ask has anyone on here had a problem getting their Hydroxycarbamide, used to get Medac brand from the Hospital, then was passed to Boots the...

Hi folks Can I ask has anyone on here had a problem getting their Hydroxycarbam...

•3 years ago

Daisy-May

Does anyone have red blotches under the skin at the back of the legs in the calf area!

Does anyone have red blotches under the skin at the back of the legs in the calf...

•3 years ago

DOES ET COMES WITH VERTIGO?

DOES ET COMES WITH VERTIGO? im suffering swaying whole day it's been 6 months till now..

DOES ET COMES WITH VERTIGO? im suffering swaying whole day it's been 6 months ti...

•3 years ago

ET at young age?

does anyone diagnosed ET at young age? im only 29

does anyone diagnosed ET at young age? im only 29

•3 years ago

Pfizer vaccine side effects

Hello everyone. I have ET CALR. I had the first vaccine in June in Austria. I felt nothing except a half day long soreness on the injection site. My...

Hello everyone. I have ET CALR. I had the first vaccine in June in Austria. I f...

•3 years ago

ET SWAYING FEELING

does anyone experiencing swaying ????

does anyone experiencing swaying ????

•3 years ago

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