Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for April 2021

Does the Astra Zenica vaccine cause platelets to clump together???

My wife has been on her current dosage of Anagrelide and hydroxycarbamide, for the past couple of years and her platelets have been quite settled at around...

My wife has been on her current dosage of Anagrelide and hydroxycarbamide, for ...

jointpain

•3 years ago

3 Replies

Hydroxicarbamide to interferon

Morning all. I may have to change from HU after 12 years ( suits me fine but is now possibly causing bcc’s ) to interferon. Has anyone else migrated from...

Morning all. I may have to change from HU after 12 years ( suits me fine but is...

Loubprv

Volunteer•3 years ago

28 Replies

SYDNEY TO COFFS HARBOUR "Cycling For A Cure" MPN RIDE UPDATE

Post by MPN-MATE Admin » Tue Apr 06, 2021 5:20 pm Evening all... :D Sorry my time on the boards these days has been somewhat restricted of late... But I...

Post by MPN-MATE Admin » Tue Apr 06, 2021 5:20 pm Evening all... :D Sorry my ...

socrates_8

•3 years ago

30 Replies

Want to take advantage of all our features? Just log in!

HU journey

Well.finally got my platelets to 340 on 2 x500 mg HUand 3 Angralide tablets Been a strange year decreased platelets and a hospital stay and surgery that...

Well.finally got my platelets to 340 on 2 x500 mg HUand 3 Angralide tablets Bee...

heathermc

•3 years ago

3 Replies

ET + JAK 2 and whether to Hydoxycarbamide or not?

Thank you so much to everyone who replied to my ealier post about this. I am so grateful for all your advice and insights and feel lucky to have this...

Thank you so much to everyone who replied to my ealier post about this. I am so ...

Cassandra61

•3 years ago

1 Reply

Second COVID Vaccine Dose!

Received my second dose of the Moderna COVID vaccine on Saturday. Not much of a reaction. Felt fatigued for about a day and had what felt like a mild...

Received my second dose of the Moderna COVID vaccine on Saturday. Not much of a...

hunter5582

•3 years ago

15 Replies

To cold to do the garden......

So I decided to do another doggie in the warmth and comfort of the house. I thought, with it being so sunny, we could potter in the garden.....was I blooming...

So I decided to do another doggie in the warmth and comfort of the house. I thou...

jillydabrat

•3 years ago

3 Replies

MPN mask

I have received my MPN mask comfortable to wear thank you

linphy

•3 years ago

5 Replies

I’m getting a bone scan on Tuesday due to having multiple lesions on my bones that you usually see with lukemia patients my question is do I

Lukemia or MPN

Skye1986

•3 years ago

7 Replies

MPN masks and t shirts

I have recently purchased several MPN masks and t shirts, with thanks to Maz for her help with this. I have to say I am very pleased with the quality of both....

I have recently purchased several MPN masks and t shirts, with thanks to Maz for...

JP1952

•3 years ago

1 Reply

Partially Vaccinated

Hi everyone! Just to let you know I had my first dose of Covid Vaccine on Saturday ( after consulting my Hematologist), had a fever for only a night. Rest...

Hi everyone! Just to let you know I had my first dose of Covid Vaccine on Satur...

neela2020

•3 years ago

1 Reply

Why do I have Extreme skin flushing and sweating. Have ET.

Hi All! I have ET, JAK2+. My platelets have been elevated since 2002 but my dr back then said that some people have higher platelets. As the years went on, my...

Hi All! I have ET, JAK2+. My platelets have been elevated since 2002 but my dr b...

Wewo01

•3 years ago

8 Replies

1st Pegysus injection went really well

Just wanted to say to you great guys out there that I had my first Pegysus injection under supervision of nurse last week and it went really well with no major...

Just wanted to say to you great guys out there that I had my first Pegysus injec...

Hopetohelp

•3 years ago

25 Replies

HU maximum dose

Hi all Just curious as to the highest amount of HU anyone takes.....I currently take 3 tabs a day (1500). This has been upped each time since I started on HU...

Hi all Just curious as to the highest amount of HU anyone takes.....I currently ...

GK40

•3 years ago

51 Replies

Treatment for enlarged Spleen

What treatments are there for an enlarged Spleen

billybrock

•3 years ago

7 Replies

Enlarged Spleen

I have post Pv Myelofibrosis and am on Ruxolitinib. My blood counts are good except for a white cell count of 21. However, my “blasts” are at 18%. I am not...

I have post Pv Myelofibrosis and am on Ruxolitinib. My blood counts are good exc...

billybrock

•3 years ago

14 Replies

?frustrated! Triple negative mpl

It’s been a year of blood tests and I am done for now. My hematologist said I have a triple negative MPL and I am to take aspirin and get quarterly monitoring....

It’s been a year of blood tests and I am done for now. My hematologist said I ha...

PeachJ

•3 years ago

9 Replies

Worried about all the anticoagulants I am taking ...

I have recent diagnosis of ET and mylofibrosis. Had gangrene in 5 th toe at Christmas...long story. I have been on Apixaban since 2016 for very infrequent...

I have recent diagnosis of ET and mylofibrosis. Had gangrene in 5 th toe at Chri...

Cabert

•3 years ago

4 Replies

AstraZeneca Vaccine and Clot Risk - Any Advice?

Hi all, I had my first AstraZeneca jab in Feb and had mild flu symptoms. I have ET and am on aspirin. I am excited but also nervous as I have my second one on...

Hi all, I had my first AstraZeneca jab in Feb and had mild flu symptoms. I have ...

Jenny_F

•3 years ago

16 Replies

FDA Issues Complete Response Letter for Ropeginterferon Alfa-2b for Polycythemia Vera

The FDA has issued a complete response letter regarding the biologics license application for ropeginterferon alfa-2b-njft for the treatment of patients with...

The FDA has issued a complete response letter regarding the biologics license ap...

JT_Marlin

•3 years ago

Be the first to reply

Interferon-Alpha Improves MFS and OS Over Standard Approaches in Polycythemia Vera

Interferon-alpha has been shown to significantly improve both myelofibrosis-free survival and overall survival over hydroxyurea and phlebotomy only in patients...

Interferon-alpha has been shown to significantly improve both myelofibrosis-free...

JT_Marlin

•3 years ago

Be the first to reply

Decisions!!

I cannot make up my mind whether it’s safe to go to Church this Easter Sunday. It is just re opening again with safety procedures in place but I have been...

I cannot make up my mind whether it’s safe to go to Church this Easter Sunday. I...

azaelea

•3 years ago

26 Replies

PV pinching - seriously can’t take it!

Hi everyone... just need to put this out to people who would understand.... i was diagnosed with PV 3 years ago and had some kind of uneventful itching for...

Hi everyone... just need to put this out to people who would understand.... i ...

Hidden

•3 years ago

35 Replies

A relaxing day painting

Spent the morning listening to Smooth Radio, painting Mr Frenchie. He will eventually be sitting on a beautiful navy blue velvet blanket with a dark...

Spent the morning listening to Smooth Radio, painting Mr Frenchie. He will event...

jillydabrat

•3 years ago

19 Replies

Recent advances in prognostication and treatment of polycythemia vera

« Although the current goals of PV treatment are to alleviate symptoms and reduce thrombotic risk, there are growing efforts to identify disease-modifying...

« Although the current goals of PV treatment are to alleviate symptoms and reduc...

Manouche

•3 years ago

2 Replies

Vaccine antibodies

I know there is is some concern about recent reports that blood cancer patients are at much greater risk than solid cancer patients. My understanding is that...

I know there is is some concern about recent reports that blood cancer patients ...

Paul123456

•3 years ago

13 Replies

PV pinching - seriously can’t take it!

Hi everyone... just need to put this out to people who would understand.... i was diagnosed with PV 3 years ago and had some kind of uneventful itching for...

Hi everyone... just need to put this out to people who would understand.... i ...

Hidden

•3 years ago

6 Replies

Good news

I have been concerned about how much immunity response I would get from covid vaccine as I have a low white cell count. My haematologist today reassured me...

I have been concerned about how much immunity response I would get from covid va...

beetle

•3 years ago

15 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for April 2021

Does the Astra Zenica vaccine cause platelets to clump together???

Hydroxicarbamide to interferon

SYDNEY TO COFFS HARBOUR "Cycling For A Cure" MPN RIDE UPDATE

HU journey

ET + JAK 2 and whether to Hydoxycarbamide or not?

Second COVID Vaccine Dose!

To cold to do the garden......

MPN mask

I’m getting a bone scan on Tuesday due to having multiple lesions on my bones that you usually see with lukemia patients my question is do I

MPN masks and t shirts

Partially Vaccinated

Why do I have Extreme skin flushing and sweating. Have ET.

1st Pegysus injection went really well

HU maximum dose

Treatment for enlarged Spleen

Enlarged Spleen

?frustrated! Triple negative mpl

Worried about all the anticoagulants I am taking ...

AstraZeneca Vaccine and Clot Risk - Any Advice?

FDA Issues Complete Response Letter for Ropeginterferon Alfa-2b for Polycythemia Vera

Interferon-Alpha Improves MFS and OS Over Standard Approaches in Polycythemia Vera

Decisions!!

PV pinching - seriously can’t take it!

A relaxing day painting

Recent advances in prognostication and treatment of polycythemia vera

Vaccine antibodies

PV pinching - seriously can’t take it!

Good news

Search posts

Pinned Posts

Latest poll

What age were you when your MPN was diagnosed?

Topics

Archive