Posts - MPN Voice | HealthUnlocked

MPN Voice

10,523 members • 14,539 posts

All posts for October 2020

Cramp

Hello All, For the last few months, I am getting cramps in my feet and legs. I stretch before bed, and walk a fair bit - not sat all day! Taking magnesium,...

Hello All, For the last few months, I am getting cramps in my feet and legs. I s...

Lydia8132

•4 years ago

2 Replies

RE: PV Secondary

Wondering if anyone else's blood specialist has told them to drink massive amounts of water for their condition of PV-secondary?

Wondering if anyone else's blood specialist has told them to drink massive amoun...

Green1445

•4 years ago

7 Replies

Shielding lobby your MP's and anyone else you can

The idea that shieilding could cease on Aug 1st was always a political pipedream and only believed by fantacisists. I am appalled that people on this forem can...

The idea that shieilding could cease on Aug 1st was always a political pipedream...

skodaguy

•4 years ago

4 Replies

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IS DEPRESSION A SYMPTOM OR SIDE EFFECT IN MPNS?

Post by MPN-MATE Admin » Mon Oct 26, 2020 8:41 am Morning all... :D Recently came across this article, which in turn reminded me of the 'Depressive' bout I...

Post by MPN-MATE Admin » Mon Oct 26, 2020 8:41 am Morning all... :D Recently...

socrates_8

•4 years ago

13 Replies

Can you have unexplained temperature with E T?

Has anyone experience high temperature for no reason with E T? I was diagnosed with E T last March but no treatment because of Covid. Few days ago I had a...

Has anyone experience high temperature for no reason with E T? I was diagnosed ...

Cokopops

•4 years ago

5 Replies

Article on MPNs Covid

Thought this might be of interest updated in September with Input from Drs. Ruben Mesa, Alberto Alvarez-Larran, Claire Harrison, Jean-Jacques Kiladjian,...

Thought this might be of interest updated in September with Input from Drs. Rube...

Dovme

•4 years ago

2 Replies

relationship between ET, platelet count, size of red blood cells, RDW, MCV, MCH

Are these test results connected and affect each other? My platelet count fluctuates around 734 and just recently in the last 2 months the doctor noticed a...

Are these test results connected and affect each other? My platelet count fluctu...

milw532

•4 years ago

2 Replies

If flu vaccine is needed

Getting a flu vaccine ? Hi everyone.hope all is well.has anyone had a flu vaccine and any notable reactions? I have been diagnosed with ET in 2018 and jack 2+...

Getting a flu vaccine ? Hi everyone.hope all is well.has anyone had a flu vaccin...

Marimar05

•4 years ago

30 Replies

Pneumonia vaccination

Just wondering if anyone else has been advised NOT to have this vaccination? I have PRV, am 68, take hydroxyea and aspirin. I have no other health issues. A...

Just wondering if anyone else has been advised NOT to have this vaccination? I h...

Turfbeg

•4 years ago

21 Replies

Unexplained temperature and E T

I’ve just got back from spending a couple of days in hospital. All started with me being so extremely cold couldn’t warm up no mater what . My husband called...

I’ve just got back from spending a couple of days in hospital. All started with ...

Cokopops

•4 years ago

3 Replies

Climbing Mt Kilimanjaro

I have ET and take hydroxy and aspirin and I'm thinking of climbing Kilimanjaro and wondered if anyone on here has done this or something similar. I've just...

I have ET and take hydroxy and aspirin and I'm thinking of climbing Kilimanjaro ...

Trueblue8

•4 years ago

21 Replies

Until a coronavirus vaccine is ready, pneumonia vaccines may reduce deaths from COVID-19

« There are two commonly given vaccines – the pneumococcal vaccine and the Hib vaccine – that protect against bacterial pneumonias. These bacteria complicate...

« There are two commonly given vaccines – the pneumococcal vaccine and the Hib v...

Manouche

•4 years ago

1 Reply

Enlarged Spleen

I have started to have some pain and discomfort from my enlarged spleen, and wondering if anyone had any top tips for this? I started getting pain/discomfort...

I have started to have some pain and discomfort from my enlarged spleen, and won...

Hidden

•4 years ago

13 Replies

Q10 otc pills /tendency for anemia

My doctor said that CoQ10 could have a positive effect on platelets/red blood cells. Presently I take 1 pill (100mg) daily. Is there any danger in an...

My doctor said that CoQ10 could have a positive effect on platelets/red blood c...

milw532

•4 years ago

4 Replies

Leukemic Evolution of Polycythemia Vera and Essential Thrombocythemia

The authors performed next-generation sequencing on samples from 49 patients with polycythemia vera (PV, n=24) or essential thrombocytosis (ET, n=25) who...

The authors performed next-generation sequencing on samples from 49 patients wit...

JT_Marlin

•4 years ago

4 Replies

Husband in hospital

Thank you all for the lovely replies. He was tested for covid when he was admitted came back negative. I wasn't worried about that, because he didn't have any...

Thank you all for the lovely replies. He was tested for covid when he was admitt...

Jean24

•4 years ago

3 Replies

Husband in hospital.

My husband in hospital at moment, he's been in there since Monday. He was really poorly over the weekend. I rang his specialist nurse and explained how he was,...

My husband in hospital at moment, he's been in there since Monday. He was really...

Jean24

•4 years ago

20 Replies

Covid and Shielding Letter

Hi I'm Jane ET Jak2. I received a shielding letter on request from G.P. and letter received government letter asking me to sign up for assistance to shield....

Hi I'm Jane ET Jak2. I received a shielding letter on request from G.P. and lett...

Yorkstyke

•4 years ago

2 Replies

As yet undiagnosed...

Hi everyone, I have a tel appointment with my GP later today to follow up but looking for thoughts on my current situation. Since 2017 my Hb, haematocrit and...

Hi everyone, I have a tel appointment with my GP later today to follow up but lo...

Peetzil

•4 years ago

4 Replies

ET/Jak2 platelet count increased and red blood cells size are smaller Doctor indicates that iron deficiency could be cause

Is there a connection between platelet count and the size of red blood cells? All other tests are within normal range. Doctor indicates that this might show...

Is there a connection between platelet count and the size of red blood cells? A...

milw532

•4 years ago

1 Reply

Conversation with MPN Specialists

MPN Advocacy & Education International is sponsoring on on-line training/conversation re. MPNs. on Nov 2, 9:00 - 11:00 AM EST Join us for a conversation with...

MPN Advocacy & Education International is sponsoring on on-line training/convers...

hunter5582

•4 years ago

4 Replies

This site

I love this site, so much information and help available. It's so nice to not to feel alone and know your not going mad.

I love this site, so much information and help available. It's so nice to not to...

ciye

•4 years ago

6 Replies

Rash???

Any ideas on this rash please? Comes on very suddenly and goes just as quick - is accompanied with pain bit no itchiensss and not exacerbated by water ? My son...

Any ideas on this rash please? Comes on very suddenly and goes just as quick - i...

AndMo11

•4 years ago

1 Reply

ET Progression?

Are younger patients at higher risk of progressing to MF since they are living with the cancer for longer? Anyone have information regarding this? Having a...

Are younger patients at higher risk of progressing to MF since they are living w...

peach98

•4 years ago

25 Replies

Swollen left ankle and foot

For a good few weeks now My left ankle and foot is really swollen. No pain anywhere just the right skin feeling when something is swollen. Has anyone else with...

For a good few weeks now My left ankle and foot is really swollen. No pain anywh...

azaelea

•4 years ago

4 Replies

Symptom Checker Help with Polychthemia

Hi I was wondering for some help please. My 20yr son is being investigated for polychemia as he has been presenting with intermittent and painful rashes on...

Hi I was wondering for some help please. My 20yr son is being investigated for ...

AndMo11

•4 years ago

8 Replies

New hydroxycarbamide dosage

Wanted to update everyone who advised and supported me when I asked for advice when six months into my diagnosis and treatment on aspirin and hydroxycarbamide...

Wanted to update everyone who advised and supported me when I asked for advice w...

Ozziepig

•4 years ago

2 Replies

Stopped my treatment for ET

I have ET and been on interferon Alpha for 11 years changed recently to peg, after a month on peg my platelets went low so stopped treatment in July.Over the...

I have ET and been on interferon Alpha for 11 years changed recently to peg, aft...

Jbut

•4 years ago

28 Replies

MPN Voice Charity Christmas Cards and other items for sale

Support MPN Voice this Christmas by sending our Christmas cards, there are six designs to choose from Bringing Home the Tree , Golden Trees, Dove Over the...

Support MPN Voice this Christmas by sending our Christmas cards, there are six d...

Mazcd

Partner•4 years ago

5 Replies

Hydroxy and Hiatus hernia and acid reflux surgery.

I have been told I will not be able to swallow my hydroxy capsules for 2-3 weeks after surgery. Has anyone else in the group experienced this and what did they...

I have been told I will not be able to swallow my hydroxy capsules for 2-3 weeks...

Mycancerconcern1

•4 years ago

6 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for October 2020

Cramp

RE: PV Secondary

Shielding lobby your MP's and anyone else you can

IS DEPRESSION A SYMPTOM OR SIDE EFFECT IN MPNS?

Can you have unexplained temperature with E T?

Article on MPNs Covid

relationship between ET, platelet count, size of red blood cells, RDW, MCV, MCH

If flu vaccine is needed

Pneumonia vaccination

Unexplained temperature and E T

Climbing Mt Kilimanjaro

Until a coronavirus vaccine is ready, pneumonia vaccines may reduce deaths from COVID-19

Enlarged Spleen

Q10 otc pills /tendency for anemia

Leukemic Evolution of Polycythemia Vera and Essential Thrombocythemia

Husband in hospital

Husband in hospital.

Covid and Shielding Letter

As yet undiagnosed...

ET/Jak2 platelet count increased and red blood cells size are smaller Doctor indicates that iron deficiency could be cause

Conversation with MPN Specialists

This site

Rash???

ET Progression?

Swollen left ankle and foot

Symptom Checker Help with Polychthemia

New hydroxycarbamide dosage

Stopped my treatment for ET

MPN Voice Charity Christmas Cards and other items for sale

Hydroxy and Hiatus hernia and acid reflux surgery.

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