Are younger patients at higher risk of progressing to MF since they are living with the cancer for longer? Anyone have information regarding this? Having a hard time finding out my life expectancy. My platelets have been elevated since I was a kid. They go up VERY SLOWLY every year. Just turned 22 and my platelets are 502. Two years ago 499. 5 years ago 437. I always ranged in the high 400s but finally hit 500+ this year. I’m doing jak2 testing in 6 months but my hematologist is already sure I have ET.
He doesn’t use the C word. He calls it “disease of the bone marrow”. He warned me of bone marrow scarring. Worried about progression. If I do have ET that means I’ve had it for 10+ years now and I’ve seen online progression percentage increases every 10 years. I just want to make it to at least 60 without progression.