Posts - MPN Voice | HealthUnlocked

MPN Voice

10,519 members • 14,523 posts

All posts for June 2020

Blood test results

I haven’t asked a question in a while but something has been bothering me. I have post ET MF and my results came back for my bloodwork last week and for the...

I haven’t asked a question in a while but something has been bothering me. I hav...

•4 years ago

Bracelet

Does anyone wear or was told to wear a medical I. D. Bracelet due to being on high doses of blood thinners and /or aspirin? Heard it’s been recommended.

Does anyone wear or was told to wear a medical I. D. Bracelet due to being on hi...

•4 years ago

Two questions - i’m going crazy.

Is it possible i artificially lowered my platelets to 446 (normal high range), by drinking water before blood test? I am not diagnosed yet with ET but my hands...

Is it possible i artificially lowered my platelets to 446 (normal high range), b...

•4 years ago

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K2, Covid and blood

https://www.theguardian.com/science/2020/jun/05/vitamin-k-could-help-fight-coronavirus-study-suggests Hi all Having read this on K2 and its relationship to...

https://www.theguardian.com/science/2020/jun/05/vitamin-k-could-help-fight-coron...

•4 years ago

Improvement in lab results with natural products

Has anyone on this forum who has jak2+ et or pv able to see significant improvement in blood levels by taking only supplements and natural herbs. I...

Has anyone on this forum who has jak2+ et or pv able to see significant improve...

markgenious1981

•4 years ago

Redumbrella

Hi have been locked out for some time due to technical issues so glad to be back, a lot has happened in the meantime.

Hi have been locked out for some time due to technical issues so glad to be back...

•4 years ago

Ocular hypertension

Ocular hypertension is an eye pressure of greater than 21 mm Hg. Yesterday I found that I had 23 mm Hg eye pressure, and I wonder if it is related to ET or...

Ocular hypertension is an eye pressure of greater than 21 mm Hg. Yesterday I fou...

•4 years ago

Ferritin Level

Hi All, hope you are all keeping safe. Had my first of 2 venesections yesterday. Must admit I never take much notice of my blood levels and only really get my...

Hi All, hope you are all keeping safe. Had my first of 2 venesections yesterday...

•4 years ago

Hepcidin Mimetic PTG-300 Promising Treatment for PV

« How does PTG-300 work to reduce or eliminate the need for phlebotomy in PV? How does iron deficiency play a role in polycythemia vera? What are the goals...

« How does PTG-300 work to reduce or eliminate the need for phlebotomy in PV? H...

•4 years ago

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FDA Accepts Application for Ropeginterferon Alfa-2b for Polycythemia Vera

The FDA has accepted a Biologics License Application (BLA) for ropeginterferon alfa-2b (P1101) for use as a treatment for patients with polycythemia vera (PV)...

The FDA has accepted a Biologics License Application (BLA) for ropeginterferon a...

•4 years ago

Need some feedback on my situation

Ok i need some advice i feel in the dark atm: I am 36 y/o woman. No other issues. Background: platelets between normal high range 440-470 for more than 10...

Ok i need some advice i feel in the dark atm: I am 36 y/o woman. No other issues...

•4 years ago

Shielding in Wales Extended

Hi, just wondered whats everybody’s thoughts on the shielding being extended to August 16th here in Wales! I want to be safe but I’m gutted. Has anyone...

Hi, just wondered whats everybody’s thoughts on the shielding being extended to ...

•4 years ago

reticulin fibrosis

Hello all! I was diagnosed last December with triple negative ET after a Bone marrow biopsy. I'm 36 and currently on aspirin only. My platelets hover around...

Hello all! I was diagnosed last December with triple negative ET after a Bone ma...

•4 years ago

RISKS OF RESPIRATORY ILLNESSES W/ MPNS

Post by MPN-MATE Admin » Wed Jun 03, 2020 11:10 pm Evening all... :D This is one of those Posts, that in some ways I would much prefer not to deliver... The...

Post by MPN-MATE Admin » Wed Jun 03, 2020 11:10 pm Evening all... :D This is ...

•4 years ago

PV positives

Right, I have PV JAK2 + and I was some years ago on a Facebook group PV support. I got thrown off! Why? Well the group were so self-indulgent, full of...

Right, I have PV JAK2 + and I was some years ago on a Facebook group PV support....

•4 years ago

Low Hemoglobin, New to MPN

Hi everyone, It's been few months since I'm reading your posts and this really helped me to reduce my stress. So thank you all . My father has been diagnosed...

Hi everyone, It's been few months since I'm reading your posts and this really ...

•4 years ago

Bone marrow biopsy

Does bone marrow biopsy hurt? (Ikkk!) Please write from your personal experience. Thanks!

Does bone marrow biopsy hurt? (Ikkk!) Please write from your personal experience...

•4 years ago

28F, terrified I might have PV

Hello, I stumbled across this forum and am so thankful I did. It’s quite a scary, lonely, and overwhelming process being investigated for an MPN. After finally...

Hello, I stumbled across this forum and am so thankful I did. It’s quite a scary...

•4 years ago

Elevated SGPT and SGOT

Hi everyone, My mom who was diagnosed with MNP 2 years ago and has been taking hydroxyurea since then, now has elevated liver enzymes like SGOT and SGPT....

Hi everyone, My mom who was diagnosed with MNP 2 years ago and has been taking ...

•4 years ago

Very sad

Evening All, I have had very sad news today. My daughter of 39 has been diagnosed with Sarcoma, a rare form of bone cancer, it’s in her thigh. I keep on...

Evening All, I have had very sad news today. My daughter of 39 has been diagnose...

•4 years ago

Heart inflammation and PV? Help!

Hello friends. I'm wondering if someone on here can help. I have PV dx Feb2017. I have been admitted to emergency with chest pain. Suspected heart attack on...

Hello friends. I'm wondering if someone on here can help. I have PV dx Feb2017....

•4 years ago

Shielding with PV

Husband has PV MPN taking Ruxolitinib 15grms twice daily. Great news about Shielders yesterday!!!! not sure now as they are saying anyone with a blood cancer...

Husband has PV MPN taking Ruxolitinib 15grms twice daily. Great news about Shie...

•4 years ago

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