Shielding with PV: Husband has PV MPN taking... - MPN Voice

MPN Voice

10,564 members14,592 posts

Shielding with PV

waddles22 profile image
4 Replies

Husband has PV MPN taking Ruxolitinib 15grms twice daily. Great news about Shielders yesterday!!!! not sure now as they are saying anyone with a blood cancer should be very careful and maybe wait for further news. I have been shielding with him. Was so looking forward to going out and having a walk but now not sure.

Written by
waddles22 profile image
waddles22
To view profiles and participate in discussions please or .
Read more about...
4 Replies
Poppy6060 profile image
Poppy6060

Hi it is all confusing I have PV and my husband has been shielded with me maybe you could give the hospital a ring for some advice we have been going out for a walk at 6 30 am a couple of times a week hope you can find answers in all this situation .

Best wishes Poppy x

Jenny_F profile image
Jenny_F

I would be cautious about the going out to be honest. At first I was going out every day for a walk as noone was about. Now there are people and cars everywhere so no way to really social distance so I have retreated to my garden only. Its all well and good saying that to shielders but if you look at the admission and infection figures and r rate its still not that safe for us and I am sure they will rise again.

moo196 profile image
moo196

I strongly believe that the government only changed the advice to cover up Cummings' misdemeanours and to kick start the economy. It's no safer than a few days ago... If anything it's less so.

I'd be outdoors at the least busy time (early or late), avoid anything busy and don't touch anything whilst out.

tracey13 profile image
tracey13

My husband has MF he's on 20mg twice a day on ruxolitanib. He was told at the beginning of lockdown he doesn't have to shield and that all his bloods are in normal range .

Anyhow last week he got a text from NHS telling him to shield 🤔 bit late for shielding now .

We've been going out for walks and no contact with noone.

He's working from home.

So in all its all confusing .

You may also like...

Shielding

Hi does anyone know if you should be shielding this month if you have a MPN .My Doctor hasn’t sent...

PV

biopsy which showed myelofibrosis. I have been taking Ruxolitinib for 4 weeks. I wondered how...

Diagnosis update - PV - in limbo

Apparently my bloods have been high since 2016, first I heard of that is today. So I have just...

PV Haematologist Discussion**UPDATE**

can confirm that I have an appointment to get bloods done tomorrow at 11:30 and have secured the...

Alcohol and PV or Alcohol and Hydroxyurea

past have enjoyed an occasional glass of wine. Lately I seem to notice, at least once or twice,...