Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for March 2016

Platelets rising whilst on hydroxycarbamide?

Does anyone have any experience of their platelets rising whilst on a relatively high (1.5g) daily dose of hydroxycarbamide? If so which alternative drug did...

Does anyone have any experience of their platelets rising whilst on a relatively...

•8 years ago

Good luck Twinkly

Good luck with your operation Twinkly. I remember the day because it is my birthday. No doubt your positive thinking will go a long way to helping you to a...

Good luck with your operation Twinkly. I remember the day because it is my birth...

•8 years ago

Well, a bit of great news

Hi everyone, I know this isn't exciting for you folks, but I have to boast to someone out there - have just heard that our lovely son in law has passed his...

Hi everyone, I know this isn't exciting for you folks, but I have to boast to so...

Volunteer•8 years ago

Want to take advantage of all our features? Just log in!

or

Hi everybody !! Here I am again ,been locked out the site ,since update .missing you all ..lots of news ,been busy ,at hospital appointments

I'm going into addenbrooks for surgery on Monday 14 th ,as my hiatus hernia ,has become strangled ,so I'm getting it all straightened out ..Iv been on...

I'm going into addenbrooks for surgery on Monday 14 th ,as my hiatus hernia ,has...

•8 years ago

MPN Voice March 2016 Fundraising Update

2016 is going to be a very exciting year for MPN Voice. It has begun with the launch of our wonderful new website, which I hope you have all now have had time...

2016 is going to be a very exciting year for MPN Voice. It has begun with the l...

Partner•8 years ago

Hydrea on wrong day. . .

Hi all, I am prescribed hydroxyurea (500mg) on Monday, Wednesday and Friday. Last night (Tuesday) I was at the cinema and was very tired when I returned. As...

Hi all, I am prescribed hydroxyurea (500mg) on Monday, Wednesday and Friday. L...

•8 years ago

Jak2+ up your risk?

I am on a face book site which believe me sometimes can be scary. But a couple people on there keep saying that having the Jak2+ gene makes your stroke risk...

I am on a face book site which believe me sometimes can be scary. But a couple ...

•8 years ago

Raised ALT, what does this mean?

Hi my MPN friends, today I received a copy of a letter sent to my GP from my MPN consultant. In it she states that my ALT is raised and because of this has...

Hi my MPN friends, today I received a copy of a letter sent to my GP from my MPN...

•8 years ago

Platelets

Helloooooo.... I spoke to my G.P. about how unhappy I am with my Haematologist and I now have an appointment, very quickly, to go and have a 'chat'. This...

Helloooooo.... I spoke to my G.P. about how unhappy I am with my Haematologist a...

•8 years ago

Cancer ward closing at Bromley

Morning all, does anyone know that lives in the Bromley area or has read in the News Shopper about the closure of the Chartwell ward at Princess Royal...

Morning all, does anyone know that lives in the Bromley area or has read in the ...

•8 years ago

Rebirthday

1827 days or 5 years. Whichever, thank you Sarah Gardner, my cell mate. Keep on following Jedireject. Hope all is going well for you. The other Chris

1827 days or 5 years. Whichever, thank you Sarah Gardner, my cell mate. Keep on...

•8 years ago

Et progression to Mf

Does anyone know the signs or changes in blood counts that would show progression from et to mf?

Does anyone know the signs or changes in blood counts that would show progressio...

•8 years ago

ET

can anyone tell me, when you are put on Hydroxy why do you have to keep taking the medication. Why can't you come off it when your platelets drop?

can anyone tell me, when you are put on Hydroxy why do you have to keep taking t...

•8 years ago

Acidity

•8 years ago

Going around in circles

So I've been laying low for a while for no other reason besides being busy..... But as we all do I'm sure is need a little reassurance every now and...

So I've been laying low for a while for no other reason besides being busy..... ...

•8 years ago

ET

I have just been diagnosed with ET and my consultant has refered me to a cardiology and neurology does any one know the reason why or is it just procedure.?

I have just been diagnosed with ET and my consultant has refered me to a cardiol...

•8 years ago

Platelets 500

Hi all, just had my bloods back and my hct is 48.9 so am having a venesection but also, my platelets are at 500. Ive had no recent infections that im aware of....

Hi all, just had my bloods back and my hct is 48.9 so am having a venesection bu...

•8 years ago

Mrs

My name is Tracey Wilkins 54 years old from Nth Queenslad Australia. I had bowel cancer 5 years ago so have been doing everything right blood tests every 6...

My name is Tracey Wilkins 54 years old from Nth Queenslad Australia. I had bowel...

•8 years ago

Tracey

Hi im tracey from australia been dignosed with pv and also hct have been waiting to see the hematologist for 2 years had to get really unwell first then got an...

Hi im tracey from australia been dignosed with pv and also hct have been waiting...

•8 years ago

High HCT, do I need to worry?

Hello all, I had high HB and HCT about three years ago and had venesection approx 7 times over the next year. I was then advised that the consultants would...

Hello all, I had high HB and HCT about three years ago and had venesection appr...

•8 years ago

1
2