I am on a face book site which believe me sometimes can be scary. But a couple people on there keep saying that having the Jak2+ gene makes your stroke risk higher, much higher and your platelets run lower so you can have strokes at lower numbers. Scary to say the least! Has anyone heard this? The MPN expert I saw or my local said nothing about if your Jak2+ your risk is higher and if you negative or Calr you have a much lower risk. This is for ET. My local Dr said he would be happy if mine stayed in the 500's.
Maz can you ask your expert if this is something new? Very worrisome to say the least because most of us are Jak2+. Thanks all, Mickey