Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for August 2015

Living with ET so young

Hello everyone My name is Emma and I was diagnosed with ET in October 2012 I was 23 when diagnosed and they only found out through a blood test that I have...

Hello everyone My name is Emma and I was diagnosed with ET in October 2012 I was...

•9 years ago

MPNs and MPN Voice featured in The Telegraph Newspaper

Read all about it! The Telegraph newspaper has a very interesting article in its edition today highlighting MPNs and other rare blood cancers/neoplasms...

Read all about it! The Telegraph newspaper has a very interesting article in it...

Partner•9 years ago

MPD Voice is famous!

See newspaper article today at http://www.telegraph.co.uk/lifestyle/wellbeing/healthadvice/11797246/We-must-not-forget-patients-with-rarer-cancers.html Best...

See newspaper article today at http://www.telegraph.co.uk/lifestyle/wellbeing/he...

•9 years ago

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Fever and ET

Hello everyone, I was diagnosed with ET/jac2 in June. I take Hydroxycarbamide 500mg one day and 1000mg the next, plus aspirin of...

Hello everyone, I was diagnosed with ET/jac2 in June. ...

•9 years ago

Travel insurance

Hi All, I was diagnosed with PV in January after having surgery for blood clots. I'm recovering well and I'm hoping to go away somewhere in Europe later on...

Hi All, I was diagnosed with PV in January after having surgery for blood clots....

•9 years ago

Pegasys Storage Temperature

Hi All, I am a 41 year old male living in Hong Kong! After a standard body health check, I was initially diagnosed as having MF after a bone marrow biopsy...

Hi All, I am a 41 year old male living in Hong Kong! After a standard body hea...

•9 years ago

ET and altitude sickness

I have ET and am going to Tenerife with my daughter and granddaughters next week. I would dearly like to go to Mt Teide but the guide books warn about...

I have ET and am going to Tenerife with my daughter and granddaughters next week...

Little-friend-Susan

•9 years ago

MPN Voice Patients’ Forum – Liverpool

Friday 2nd October 2015, 1.30 pm – 5 pm, registration and lunch from 1 pm Britannic Suite, The Liner Hotel, Lord Nelson Street, Liverpool, L3 5QB This forum...

Friday 2nd October 2015, 1.30 pm – 5 pm, registration and lunch from 1 pm Brita...

Partner•9 years ago

pv ,mf1 ,jak2 positiv,jakavi,femal,

iwas diagnosed pv in2012.,first treatment phlebotomies later hu.in2015 my illness progressed:if felt more exhausted and had temperature for weeks .a second...

iwas diagnosed pv in2012.,first treatment phlebotomies later hu.in2015 my illne...

angelikadrschell25

•9 years ago

SEPTEMBER IS BLOOD CANCER AWARENESS MONTH - Get the Chatter Going for MPNs

September is Blood Cancer Awareness Month and we want to ‘get the chatter going’ to raise awareness of MPNs, and are asking if you would like to hold a coffee...

September is Blood Cancer Awareness Month and we want to ‘get the chatter going’...

Partner•9 years ago

Went to artheritis clinic today .i need to have a moan !

Hoped to get a new drug but I was turned down because my blood counts are irratic again .,,,now for the good news ,,as compensation I got a big steroid...

Hoped to get a new drug but I was turned down because my blood counts are irrati...

•9 years ago

The Transplant Games

Because I am very involved in the congenital heart disease family because of my son I know a lot of people that took part and my friend said the Anthony Nolan...

Because I am very involved in the congenital heart disease family because of my ...

•9 years ago

Which MPN Treatment When? Experts Weigh in

Greetings from rainy Ireland: New video posted on patientpower.info/mpn with American docs, Stein and Oh, from the Chicago Patient Power Town Meeting. Lots...

Greetings from rainy Ireland: New video posted on patientpower.info/mpn with Am...

•9 years ago

My hero.. Kris Carr

My inspiration.. with humour! https://www.youtube.com/watch?v=CGvM0exvn2c xx

My inspiration.. with humour! https://www.youtube.com/watch?v=CGvM0exvn2c xx

•9 years ago

Alternatives to HU

What alternatives have people been offered or used after finding out HU no longer seems to be working. How have got on with these other meds. I am in my mid...

What alternatives have people been offered or used after finding out HU no longe...

•9 years ago

Manchester get together

Hi everyone, how did the Manchester get together go? Sorry I couldn't join you. Louise x

Hi everyone, how did the Manchester get together go? Sorry I couldn't join you. ...

Volunteer•9 years ago

Asprin

Morning my friends , just interested to know , what time of day do you all take your asprin? up till now i take it after my evening meal ! Reason being i had...

Morning my friends , just interested to know , what time of day do you all take ...

•9 years ago

what is it, really?

You know, I don't think I've posted here recently as I live mainly in America. Am in UK for part of the year, and have had medical care there. It seems that...

You know, I don't think I've posted here recently as I live mainly in America. ...

•9 years ago

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