Travel insurance

[MarkD6701]

Hi All, I was diagnosed with PV in January after having surgery for blood clots. I'm recovering well and I'm hoping to go away somewhere in Europe later on this year. I just wondered what are peoples experiences of getting travel insurance for a MPN and are the extra costs off putting?

Many thanks

Mark

[Nickthedevil]

Hi Mark I use Staysure for my travel insurance and they cover for ET with very little extra cost.

Karen

[MarkD6701 in reply to Nickthedevil]

Hi Karen, That's great to hear. When describing the MPN was it a complicated process when talking about ET? I'm just a little worried about the information I need to give the insurance company - and to make sure they fully understand the illness as I don't want to be accused of giving the wrong details if I need to make a claim.

[Nickthedevil in reply to MarkD6701]

Hi Mark now I think about it I think the only question they asked was if the condition had led to clots. When I said no there were no further questions, but as you were diagnosed after being treated for clots it may be different. However it's definately worth giving them a try as they are generally very competitive for all pre-existing conditions (and I have to declare quite a few!!!). Good luck.

Karen

[Paul42]

i certainly find it a lot more expensive, if i was to just disclose the PV its not so bad, but because i have varices which are as a direct result of the PV then it rockets...4 days in greece was 115.00

Its a must have though

[MarkD6701]

Aside from taking out insurance, I wonder how much will the European Health Insurance card cover me for if I were to get more blood clots or other symptoms because of my PV?

[piggie50]

I also have PV and use Stay Sure. I always do an annual policy. Just under £50 for me for Europe. I've never had a clot, but you just need to answer their questions honestly. I always have to spell Polycytheamia! I was with the AA until this year, but the premium went sky high so I changed. I'm sure you will find something at a reasonable price. MPD Voice also has a list of insurers.

Judy.

[jamieisabella]

Hi Mark, these insurance companies can be pretty strict about this so best tell them "everything" otherwise you could find them "wriggling" out of any claim. They're particularly interested in clots. Mine was with my bank and they were fine with ET just charged me £40 extra but then I had to tell them I was having knee surgery and they wanted my life history! I'm about to give Staysure a try they've had good reviews. Good luck

[lizzieET]

I have travel insurance through my bank First Direct. Again they asked the question about clots & as I've not had any there was no increase in premium. As others have said just be honest & shop around.

Liz

[Little-friend-Susan]

I have free insurance through my bank and they too only asked about clots. I do have to pay £80 extra but this is a lot cheaper than any of the other annual insurances I looked at. It does include my husband as well so I thought that was not too bad as we are both over 70.

[SusanFletch]

I use a company called Blue Bear and they have been really good. I have myelofibrosis and agree about answering truthfully. I found blue bear's questions less intrusive than most other companies I have used. I have also used my EHIC card in France to have a blood test done. It was a different experience to home but excellent.

I hope you get this sorted because just getting away even for a short time is really good, makes you feel normal.

Susan

[Eadaoin]

I've used All Clear Insurance twice. They are very helpful and there is no problem with getting insurance. I have MPN/MDS plus a pacemaker and I paid £84 for 18 days in Italy last year. Some years back a list of travel insurers was given to us at Guy's hospital possibly via MPD Voice. Good luck and enjoy your holiday.