Which MPN Treatment When? Experts Weigh in

[andrewschorr]

Greetings from rainy Ireland:

New video posted on patientpower.info/mpn with American docs, Stein and Oh, from the Chicago Patient Power Town Meeting. Lots coming from the London MPN Voice meeting very soon,

See: patientpower.info/video/how...

Sorry about login required for the newest content (privacy strictly protected), but it has swelled our numbers to almost 2,000 in MPNs and creates a super compelling reason sponsors, who have no control, will support our worldwide educational activities. Thanks for understanding. We will work with HealthUnlocked to have one login that can work across sites like Facebook, give us time.

[Hidden]

What! It's raining in Ireland???? Hope it's not spoiling your stay!

[Twinkly]

Hi Andrew ,,we all hope the rain isn't spoiling your holiday in Ireland .but you see we get wonderful dairy products because of the lush healthy grass ..and they breed excellent healthy dogs ,,fresh air and lots of space for exercise ..so we just love Ireland .the friendliness and culture is truly unique ,even the witches and goblins are the very best ,,get your fortune told by a real Irish witch Andrew ,it's an experience not to be missed .. On a personal note ,I'm looking forward to the rest of the filming of the London forum .the interviews of us sickly patients .after all I even got my roots done special for that event !! Love to you all. Twinkly. Xx

[andrewschorr in reply to Twinkly]

Thanks! The sun is out in Dingle today! Hiking!

[craigdarcy]

Hi Andrew. I am a newly diagnosed ET patient, can I ask does the "voice" had a GP access able section to help GPs understand and learn. If we do could you please let me know so I can pass it on, I find my GP poor on the subject she is very general and continuously says ask your haematologist.

Ps, I found the on line coverage of your live forum very good.

Regards Craig Darcy

[andrewschorr]

Several resources: 1) patientpower.info/mpn and can look up under ET 2) oncology tube.com and same search 3) mpnresearch foundation 4) mpdvoice.org I would start with #1 so that your doc can watch brief video from mpn specialists about the latest treatment for ET.