Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for April 2015

blood counts

Hi, I am developing a pattern of low platelets (115) and high whites (15) plus high haematocrit (0.48), taking hydroxy. Worried about what this means. Any...

Hi, I am developing a pattern of low platelets (115) and high whites (15) plus h...

•9 years ago

First uk mpn support group

So proud and pleased I started the first mpn support group in the uk at maggie's nottingham now taken over by maz and mpn voice and angela the specialist...

So proud and pleased I started the first mpn support group in the uk at maggie'...

•9 years ago

Hydroxycarbamide. How high were your pplatelets when put on this?

Hi I am interested to know if those prescribed hydroxycarbamide had really high platelets when prescribed. Can anyone who is on it give me an idea of how...

Hi I am interested to know if those prescribed hydroxycarbamide had really hig...

•9 years ago

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Seems to me it's a lot to do with your state of mind ....

First requirement when living with an mpn ,is a strong attitude to being well. If we allow this horrible problem to rule our waking life ,it will get a strong...

First requirement when living with an mpn ,is a strong attitude to being well. ...

•9 years ago

Just a thought ..

Iv had such a difficult time since my clinic visit ,2 weeks ago . My white cells rocketed up .so I developed all kinds of problems ,in the downstairs pluming...

Iv had such a difficult time since my clinic visit ,2 weeks ago . My white cells...

•9 years ago

We could all be fine looking fillies!

My 21 year old daughter has over processed fine hair & someone has recommended Mane N Tail shampoo/conditioner. Now, this stuff is designed for horses but...

My 21 year old daughter has over processed fine hair & someone has recommended M...

•9 years ago

feeling yuk today

Probably done far to much yesterday , If that's possible ??? , from a 2 mile walk , to gardening , cleaned the home from top to bottom , & ironing shopping...

Probably done far to much yesterday , If that's possible ??? , from a 2 mile wa...

•9 years ago

Skull changes

So have just reached 60 and tonight noticed I have a kind of bump about an inch wide from the front to back of my skull. Is this age related or am I weird?

So have just reached 60 and tonight noticed I have a kind of bump about an inch ...

•9 years ago

hi it

hi its Steven George I have et since 1994 I had a good run doctors at the hospital said I was a bit young to get it I was only in my twenties I lost a lot of...

hi its Steven George I have et since 1994 I had a good run doctors at the hospit...

•9 years ago

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Azactidine

I would be interested to hear from anyone who has been treated with Azactidine. I have MDS RAEB with excessive blast cells, my initial bone marrow aspiration...

I would be interested to hear from anyone who has been treated with Azactidine. ...

•9 years ago

Osteoporosis and PV

Does anyone else suffer from osteoporosis and PV - diagnosed with osteoporosis 3 years ago at the age of 51 and with PV 2.5 years ago at the age of 52. I am...

Does anyone else suffer from osteoporosis and PV - diagnosed with osteoporosis 3...

•9 years ago

Tea Party Update...

Hello everyone Happy Easter & I hope you enjoy the break with friends and family. Just to let you know we had the Tea Party at the Rubens at the Palace and...

Hello everyone Happy Easter & I hope you enjoy the break with friends and family...

•9 years ago

Ruxolitinib and MF without JAK2

I have been diagnosed with MF for just over a year now. I am JAK2 negative, no spleen symptoms and have none of the other common mutations. After 10 months...

I have been diagnosed with MF for just over a year now. I am JAK2 negative, no s...

•9 years ago

HAPPY EASTER 💐🌹🌷🌸

Wishing all my love lovely friends a Happy Easter , x My Attempt at Easter cakes :)

Wishing all my love lovely friends a Happy Easter , x My Attempt at Easter cakes...

•9 years ago

Happy Easter everybody ....

Take time just for you !..not too much chocolate ! Love twinkly xxx

Take time just for you !..not too much chocolate ! Love twinkly xxx

•9 years ago

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