I have been diagnosed with MF for just over a year now. I am JAK2 negative, no spleen symptoms and have none of the other common mutations.
After 10 months treatment with PEGASYS my condition stabilised without improving. I was strongly advised to go for a BMT.
Consequently my Pegasys has been stopped now for 6 weeks. 1st month OK then eye infections, thrombosis in arms and legs and general weakness.
In view of this my Heamo is proposing to put me on Ruxo to try and get my strength back and reduce the MF effects.
Does anyone else know of Ruxo being used in this fashion?
I repeat, I'm MF with Jak2 neg.
Thanks for any insights.