Skull changes

[Yellowpuma60]

So have just reached 60 and tonight noticed I have a kind of bump about an inch wide from the front to back of my skull. Is this age related or am I weird?

[oddhead]

Sounds familiar. I am 67 and noticed a year ago similar change. Somehow I'm not worried but curious about this skull bone change. Are you planning to see a doctor?

[Twinkly]

I find my head shape has changed ,since taking steroids over long periods ,

At first I blew up puffy like Michelin man ..being its for rheumatoid arthritis ,I don't get any choice ,,I'm older than you .but iv now stopped taking steroids by mouth ,I have injections ,about 4/6 months apart .. Twinkly x

[light]

Hi, I noticed some changes on my skull while ago. Something like grooves and bumps on front an back of my head. I am patient with ET Jak2+, now three and half years since diagnosed, and I am wondering if this bone changes is related with bone marrow changes. Wishing you well

[Tinkerbell13 in reply to light]

How extraordinary, had never associated it before, also ET Jak+ and before diagnosis, strange lump on forehead....maybe more than coincidences, perhaps?? Best wishes, Tinkerbell13

[Yellowpuma60]

May I ask what is ET?

[blulou in reply to Yellowpuma60]

essential thrombocythemia

[tatty123]

I noticed a change in the shape of my skull about a year ago. After going to my gp twice & then a neurologist, I was diagnosed with having benign lesions on top of my skull.

However he discovered that I had a high platelet count & from there I saw a haematologist. I have since been diagnosed, after blood tests and a BMB, with ET and am CALR+.

[Yellowpuma60]

I have never heard of it, which I should be grateful for. What is it, there is a lot written about people on this site having it. Sorry to be so ignorant but am interested.

[piggie50]

Hi yellowpuma60,

You don't say which mpn/ mpd you have been diagnosed with? If you go to the website mpdvoice.org.uk this will give you all the information on the three types - essential thrombocythaemia (ET), polycythaemia vera (PV) and myelofibrosis (MF).

Best wishes

Judy

[Aime]

Judy, how are you. Kind regards Aimexx

[piggie50 in reply to Aime]

Hi Aime,

I'm good thank you. I reduced my working hours to 3 days back in January. Still really busy I don't know how I managed working full time. Abbie, who you met with me at the London forum had a little boy - Joseph last May and has just returned to work part time so I have him on a Thursday. He's an absolute joy but does wear me out! I must admit the older I get the more I think about making memories for my grandchildren as my mum done for my girls. Luckily they all live close so I see them lots.

I hope you and the family are keeping as well as you can.

Love

Judy xx