Patients' Forums 2013

[Mazcd]

We are pleased to announce that there will be two patients’ forums in September 2013 in London and Colchester. Forums are a great place to meet fellow patients, haematologists and MPD specialist nurses to share, learn and support each other in an informal and relaxed atmosphere.

London - Friday 13th September, 6 pm – 9 pm, registration from 5.30 pm, the forum will be held in the Governors’ Hall, St Thomas’ Hospital, Westminster Bridge Road, London, SE1 7EH.

The programme is yet to be finalized, but will include the breakout groups for each MPD to give you the chance to chat with other people who have the same MPD as you, there will also be a family/friends group facilitated by a qualified family therapist, this gives your family/friends a chance to chat to others about how to help and support you.

Colchester - Monday 16th September, 4 pm – 7 pm in the Post Graduate Medical Centre, Colchester General Hospital, Turner Road, Colchester, Essex, CO4 5JL.

This is the first patients’ forum to be held in Colchester and we would like to thank Joanne Tonkin, Nurse Consultant, for hosting the forum.

The programme will include talks from Dr Marion Wood on MPDs the basics, Dr Hamblin on side effects of commonly used drugs and Joanne Tonkin will talk about MPDs in Colchester. There will also be a question and discussion session before the forum closes.

You are very welcome to bring family and friends with you to either of the forums, there is no fee to attend, a complimentary light buffet with hot and cold refreshments will be available at both forums. To register please email [e-mail] and include details of what MPD you have (for the name badges) and also the name(s) of your guests. Maps and travel directions for both hospitals are available to download from our website....mpdvoice.org.uk/get-involve...

Would you like to give a talk at the Colchester forum and give your perspective of what it is like to live with a MPD? Or perhaps you've been on a drug trial and would like to share your experience with other people at the forum. If you would like to give a talk for about 10 – 15 minutes please email [e-mail], and include a contact telephone number, with an outline of the subject of your talk and a member of MPD Voice will contact you to discuss it with you.

We look forward to seeing you at hopefully both of the forums.

[rubyrubyruby]

How lucky do I feel to have a forum in my home town.

Thanks for organising this. I will definitely be going.

[Mazcd Partner MPNVoice in reply to rubyrubyruby]

I hope you enjoy it. Maz

[Aime]

Hi Maz, would love to come but can't afford these forums plus the November one but hopefully will get the chance to meet other forum members in November. Hope it all goes well. Kind regards Aime

[Mazcd Partner MPNVoice in reply to Aime]

Hi Aime, I completely understand, what with train fares and hotel bills it can be quite expensive, but don't worry you will get to meet lots of forum members at the Living with MPDs Day, and of course all of us at MPD Voice. It will be good to see you, best wishes, Maz

[Geoff_mpnfamily]

I almost post this again not knowing this was hear, i'm well pleased about the Local Forum in Colchester (Finally) i'm going to try and get some time off for that one.

[Swede]

Sorry..I have no possibilities to attend other than near NW Manchester. Cannot afford it...