Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

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Newly Diagnosed posts

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Diagnosed with FND Yesterday

Hello,I was diagnosed with "conversion disorder" (which I learned is now called FND) yesterday after visiting the ER. I had never heard of it before. I have...

Hello,I was diagnosed with "conversion disorder" (which I learned is now called ...

NoahVampire

•10 months ago

5 Replies

My First Post - Mostly Myoclonus

I told my story in my profile. I'm 65. I'm from California. My mom had MS. She spent years trying to get a diagnosis. I have been struggling with "Essential...

I told my story in my profile. I'm 65. I'm from California. My mom had MS. She s...

RubyRena

•1 year ago

6 Replies

newly DX

after covid i started feeling unbalanced in my gait and my speech sometimes makes me sound like i'm drinking lots of wine i have already paid quite a bit in...

after covid i started feeling unbalanced in my gait and my speech sometimes ma...

nurseny

•1 year ago

7 Replies

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Is it FND...

My husband had unusual symptoms at the end of March 2021, namely tingling/buzzing sensation in both his thighs and felt 'wobbly' on his legs... fast forward a...

My husband had unusual symptoms at the end of March 2021, namely tingling/buzzi...

Hidden

•2 years ago

5 Replies

Hi! I am new here and NEW to FND diagnosis too

I am Julie I am stressed, scared, sad, overwhelmed with this "new" aditional diagnosis I lost my 40s to what I now know were both FND and a Brain Tumor making...

I am Julie I am stressed, scared, sad, overwhelmed with this "new" aditional dia...

Julie729

•3 years ago

4 Replies

Thank you FND Hope

Hi, About 6 months ago I was told by a neurologist that I have FND. Ive been in denial since and didn’t even want to look it up. Tonight I heard an interview...

Hi, About 6 months ago I was told by a neurologist that I have FND. Ive been in...

Kellylamb

•3 years ago

3 Replies

What was it like leading up to your diagnosis? Did you feel that you were taken seriously?

Hello, I am interested in hearing about others journey receiving FND diagnosis. Did you get much testing to rule out other possibilities? What resources and...

Hello, I am interested in hearing about others journey receiving FND diagnosis. ...

alaslizards

•3 years ago

14 Replies

Could my FND actually be dopamine deficiency?

My neurologist has just diagnosed me as FND and has suggested psychotherapy. However, I feel certain my symptoms are dopamine deficiency related. E.G - motor...

My neurologist has just diagnosed me as FND and has suggested psychotherapy. How...

Numina

•4 years ago

22 Replies

Struggling with new diagnosis and the debilitating symptoms I have!

Hello all, I have recently been diagnosed with FMD. I have uncontrollable jerking in my legs, I am unable to walk without assistance. On a really bad day it...

Hello all, I have recently been diagnosed with FMD. I have uncontrollable jerk...

Graf67

•4 years ago

5 Replies

Just Diagnosed with FND

Confused. Trying to work it all out. Just diagnosed

Collie44

•4 years ago

8 Replies

FND & Fibromyalgia

I am a 74-year-old, reasonably fit man and live near Brighton. I was diagnosed with FND last week by Dr Khan at St Georges Hospital after many years of...

I am a 74-year-old, reasonably fit man and live near Brighton. I was diagnosed w...

Rysat

•5 years ago

2 Replies

What is this? FND

Last September i had a horrible migraine pulsating hot scalp light sensitive. It began. Tinnitus in ears helicopter sounds, auras, eye pain continued....

Last September i had a horrible migraine pulsating hot scalp light sensitive. It...

Why88

•5 years ago

1 Reply

Newbie

Hi all I've just been diagnosed with FND - I know nothing about it apart from how it has invaded my body and I now struggle daily with rotten symptoms. I don't...

Hi all I've just been diagnosed with FND - I know nothing about it apart from ho...

Talulla40

•5 years ago

12 Replies

Hello from a gal with FND, autoimmune considerations, and more..

Just a quick introduction. I'm Katherine, and my friends call me Kayteezee (sounds like KTZ) or Katie. I'm considering this space a space of Friends.. so hi...

Just a quick introduction. I'm Katherine, and my friends call me Kayteezee (so...

kayteezee

•5 years ago

15 Replies

Diagnosed without brain mri

Hi all I’ve been diagnosed with fnd. I’ve not had a brain mri only a cervical and lumbar one which was clear apparently. Dr said he diagnosed me on positive...

Hi all I’ve been diagnosed with fnd. I’ve not had a brain mri only a cervical an...

artmom

•5 years ago

20 Replies

New to FND

I just got diagnosed with Functional Neurological Disorder today. I've been struggling with a tremor in my right arm for over a year and then about a month ago...

I just got diagnosed with Functional Neurological Disorder today. I've been stru...

Violinist95

•6 years ago

4 Replies

MS and FND?

hi everyone! I am new here, and I am hopeful some of you guys can pass me some thoughts! I am 21, and got diagnosed with RRMS in February last year. MRI shows...

hi everyone! I am new here, and I am hopeful some of you guys can pass me some t...

Hidden

•6 years ago

3 Replies

First post!

I've just made this account and I'm relieved there's a place where there may be somewhere people can relate to my experiences and I'm not simmering in my own...

I've just made this account and I'm relieved there's a place where there may be ...

crystallinecanine

•6 years ago

9 Replies

Scared and misunderstood

Hi. I am new here. I was diagnosed with FDN last week . The only thing that I was told was to go see a neuropsychologist and that the hospital that the doctor...

Hi. I am new here. I was diagnosed with FDN last week . The only thing that I wa...

Bubblelicious23

•7 years ago

18 Replies

Still Learning

Hi Everyone, I'm new here and I started having spells in December of last year, loss of balance, dizziness. I saw many doctors, spent days in the ER, days...

Hi Everyone, I'm new here and I started having spells in December of last year, ...

zful23

•7 years ago

4 Replies

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Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

Newly Diagnosed posts

Diagnosed with FND Yesterday

My First Post - Mostly Myoclonus

newly DX

Is it FND...

Hi! I am new here and NEW to FND diagnosis too

Thank you FND Hope

What was it like leading up to your diagnosis? Did you feel that you were taken seriously?

Could my FND actually be dopamine deficiency?

Struggling with new diagnosis and the debilitating symptoms I have!

Just Diagnosed with FND

FND & Fibromyalgia

What is this? FND

Newbie

Hello from a gal with FND, autoimmune considerations, and more..

Diagnosed without brain mri

New to FND

MS and FND?

First post!

Scared and misunderstood

Still Learning

Search posts

Pinned Posts

Latest poll

Are you FND aware? Do you wish others were? How are you most likely to engage in advocacy for FND:

Topics

Archive