I've just made this account and I'm relieved there's a place where there may be somewhere people can relate to my experiences and I'm not simmering in my own head about these things. My name is Shy and I'm 19, it's nice to meet ya! I haven't been diagnosed yet, but I'm planning to get some tests done and to see better doctors that are better equipped for these issues.
In any case, here's a synopsis about whats been going on: September 2015 was when my symptoms started. It begun when I got off a city bus and left my wallet so I sprinted like mad after the bus. I caught up to it, but my legs started buckling. I thought nothing of it since usually after sprinting like I did anyone would have leg weakness like that. But I realized that something was not right when it would not stop. The buckling comes without warning or pain and it switches off between the right and left legs, coming with fatigue on bad days. I used to be able to stop from falling to the ground but after two years of doing extreme squats (lol), my knees can't exactly do the same. My legs are strong though so there's a plus!
I've been to various doctors and neurologists and have had various scans done on my back, legs, and brain. A result from the X-ray was that I have spina bifida occulta, a minor form of a birth defect that had never affected me before. Other than that, all MRI/ X-Ray results were normal.
I also have had myoclonus where my neck violently twitches to the side uncontrollably and atonic drop seizure episodes where either my head or torso suddenly jerk down to the ground, also not under my control. Both only while sitting but rarely while standing. The twitching also can happen on days I'm not falling. These symptoms are not as often as the legs, but when they arise, it's pretty embarassing to be twitching and dropping when everyone else is sitting pretty!
I've already come to grips that this is what I'm gonna have to deal with for a while so I've stopped being depressed about it. But my main problem is the relapses. There will be some times where I'll be going weeks with having to use my crutches but other times there can be spaces of two months with little to no serious symptoms. I know that I do have a health issue, but with long relapse times... it kinda makes me feel like somehow I am faking it sometimes.
It really sucks because I had so many plans on what I wanted to do in life. I'm almost 20 but I can't even work in the career I have dreamed about since I was a kid. Even when I can walk just fine, after standing and working hard for 2-3 hours the buckling comes back so that cancels out any work I would have any joy in. I work at home and it's fun, but... It really stings to give up dreams for something that just came up.
Just to ask, does anyone else have symptoms that seem to wax and wane unexpectedly? Sorry for the long first post! I hope it's not the only one I make. I look forward to talking with some of you! 
My First Post - Mostly Myoclonus
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