MS and FND?: hi everyone! I am new here... - Functional Neurol...

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MS and FND?

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hi everyone! I am new here, and I am hopeful some of you guys can pass me some thoughts!

I am 21, and got diagnosed with RRMS in February last year. MRI shows lesions and while I had no oglial bands (or however those are spelled) my LP came back inconclusive. So I got diagnosed and put on copaxone.

I went and saw my Neuro on Tuesday, and she said I also have FND, or Conversion Disorder rather. But I am confused - can I have both? I mean, she's not taking my MS diagnosis away, she just says my brain scans look too good for the symptoms I am showing. To be clear though, I haven't called or said anything to them that would make it seem like I was relapsing, apart from my eyesight going worse. I've explained my dizziness, my leg weakness, and such, are still there but she says none of my symptoms except for a few are MS related. She even told me my heat intolerance is not related! She says though I am mostly FND with a little MS. But I don't get how I can be both? I have no resources, and I have been offered none.

Any help would be appreciated!

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Seaotter2020 profile image
Seaotter2020VolunteerFND Hope

Go to FNDHope.org I think you will find members who will say co-morbidly diagnosis is common. It is unfortunate that you sometimes need such a serious diagnosis to get a treatment plan :(

pickleweed profile image
pickleweed

Yes, you can have both MS and FND. Your brain's reaction to MS could cause FND.

Katherinedeane profile image
Katherinedeane

Yep, as the other two have said dual diagnosis not uncommon - they may be linked or you may just be unlucky. Either way I would query your neurologist's certainty about being able to say which exact symptoms are MS and which FND. And you definitely want treatment of them anyway - many hugs - hope you get good care soon

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