Thank you FND Hope

[Kellylamb]

Hi,

About 6 months ago I was told by a neurologist that I have FND. Ive been in denial since and didn’t even want to look it up. Tonight I heard an interview on UCB radio about FND Hope.org and decided to take a look. So here I am. Totally new to all this yet relieved also that I’ve found somewhere to come with all my strange and frightening symptoms that vary day to day yet always remain. So I just wanted to say hi everyone and it’s really good to hopefully feel not so alone in my anxiety about the weirdness of the symptoms and it also feels hopeful that I might not be actually dying from a misdiagnosis.....For the first time in over 3 years I feel calmer about my health, so thank you FND Hope.

[MONIREN]

Yes, it is overwhelming, especially when your symptoms change. It's sad that, some have a harder time than others. It's also good to know your weird symptoms are not so weird. It's about coping with your new normal. Not easy, but valuing each accomplishment however small is still better than before. I hope that the many kind ones here help you. Take care!

[Westie_1]

Hi Kelly it is hard to accept but once you do you I think you actually treat yourself better? I thought I was going crazy and was shocked myself thinking they’ve given me the wrong dx But honestly there are a lot of us on here and what Moniren said is very true. Some have a harder time than others. You will learn to cope as best as you can. You may even overcome some of the symptoms you have or they might improve 😊I firstly would say take your time learn to love you and stay as stress free as possible. (I know it’s not easy but I find it helps) Take care X

[Rebeccaofsunnybrook]

Wow I’m glad you finally looked and feel calmer. I’m complete opposite I need to know everything I diagnosed myself I’m new too diagnosed 6 months ago