Has anyone experienced Depletion/Regr... - Functional Neurol...

Functional Neurological Disorder - FND Hope

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Has anyone experienced Depletion/Regression/Deterioration in mobility after MVA without treatments?

Doglover2016 profile image
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I was in a severe MVA in 2018 causing brain injury, FND, highly compromised vision and PTSD. I am just wondering how everyone’s journey has been when it comes to depletion/regression/deterioration for mobility? For example, for over three years I wasn’t given proper treatment and my mobility declined to using a cane/walker/wheelchair. Has this happened to anyone else?

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Doglover2016
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mia-juana profile image
mia-juana

Yes! This sounds similar to my story. Major MVC 2017 where I didn't hit my head and wasn't diagnosed with a concussion, but symptoms and a QEEG in 2020 point to a moderate TBI. This and my complex PTSD most likely caused the triggered the FND then, but I was on daily doses of benzodiazapines for anxiety at the time. my symptoms were hidden for a long, long time. in 2020 I finally kicked the benzo addiction just for the FND to show up. It hit hard and fast. Within a year I was using a wheelchair part time and my working memory was so bad I couldn't have conversations or follow a TV show. It was bad but I found the right treatment for me rather quickly: NEUROFEEDBACK. Saved my life. I walk and talk and I felt healthy enough to have children. I thought maybe the FND was gone for good, but it seems to have been brought back by stressful life events, so I plan to get in touch with my neurophysiologist again to get back into neurofeedback. I hope this helps you.

Doglover2016 profile image
Doglover2016 in reply to mia-juana

Thank you Mia-Juana for your reply. From my understanding my TBI led to FND as well. It has been a long journey and continues to be. I will look into the Neurofeedback. I am really interested in the long term effects as well. Thank you again for taking the time to respond, I do appreciate it!

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