I would like to thank everyone who re... - Functional Neurol...

Functional Neurological Disorder - FND Hope

6,114 members3,373 posts

I would like to thank everyone who responded to my previous post - Lack of disorder knowledge by GP

Simona35 profile image
2 Replies

Once again thank you for your help and support, I had another GP visit today and it went much better, I was very polite, but told him that sometimes I don't feel heard and understood, that I need his support and help to manage my symptoms while I wait to be seen by a specialist and this time I felt heard. Anyone who is struggling please stay strong, I know how difficult it can get, we're here to help each other. Sending my best wishes to you all

Written by
Simona35 profile image
Simona35
To view profiles and participate in discussions please or .
2 Replies
210272 profile image
210272

Hats off to you :) #IFeltHeard

If anything is going to reduce the 'plague' (to quote Prof Stone) of stigma surrounding conditions like FND it's being heard. Bravo, Simona35 - this is how we empower people to better health.

Lady4 profile image
Lady4

Hi, one of the things highlighted in the "Diagnosis" 3rd Podcast was "validing the patient" making sure they know they are being heard and hopefully many specialists all around the world tuned in.I am glad you got heard this time.

Its such an stressful and emotional journey and thats what the all medical professionals need to realise, especially the GPs as they are often the first port of call and if the diagnosis is not delivered correctly then envitably they are going to make the patients more stressed.

Not what you're looking for?

You may also like...

Lack of disorder knowledge by GP

Does anyone experience difficulty to be understood by their GP regarding FND due to a lack of...
Simona35 profile image

Meeting with hospice nurses this morning

Morning FND Friends I just wanted to say that I have my first appointment with the hospice nurses...
Littlecook profile image

Scottish Petition on more NHS Support for FND Sufferers

Hi Peeps I've signed the UK petition calling on better NHS provision for FND sufferers. I've put it...
DNE92 profile image

Finding a Dr who understands FND and varying symptoms

Recently diagnosed FND and PNES. Having a difficult time finding a Dr who is educated and...
Newdx2023 profile image

Feeling More Hopeful Now.

Hi, I am Johanna. Recently, last week January 14th, diagnosed after a long, difficult and very...
Tewa profile image

Moderation team

See all
FND_ profile image
FND_Administrator
1fnd profile image
1fndAdministrator
hope4fnd profile image
hope4fndModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.