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Endometriosis UK

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Waiting for laparascopic Hysterectomy but struggling with womb and bowel symptoms

Hello everyone, I hopefully have a date next month for a laparoscopic Hysterectomy - waiting for confirmation in writing. Have been waiting for nearly 2 years...

Hello everyone, I hopefully have a date next month for a laparoscopic Hysterect...

Kittie5117

•3 months ago

15 Replies

Urgency card for endo

Just wondering of anyone knows where or if there is an urgency card available for endometriosis? I've seen them for crohns and colitis and I've seen endo cards...

Just wondering of anyone knows where or if there is an urgency card available fo...

Bedishome

•5 months ago

8 Replies

Severe Bowel Endo/ Adeno

Hi all, posting for the first time just for a bit of support and to see if someone has been in a similar position. I have been going back and forth to the...

Hi all, posting for the first time just for a bit of support and to see if someo...

Zb92

•7 months ago

17 Replies

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symptoms ?

Hi all, i was diagnosed over 3 years ago with endo & adeno. This year i went back on prostap even though it made mw extremely unwell the first time & after...

Hi all, i was diagnosed over 3 years ago with endo & adeno. This year i went ba...

mjo44

•9 months ago

4 Replies

Can an endo doctor alone handle the complexities of my symptoms?

I have found that I can control pains during my period. But the pains that start 2 days after my period are unbearable and present with severe gastrointestinal...

I have found that I can control pains during my period. But the pains that start...

AnnaMae

•11 months ago

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Preparing myself for a full hysterectomy, bowel resection and stents in bladder......

Has anyone been through this or similar? I'm desperate for support and I'm terrified about this operation. I have been given a 50% chance of a better quality...

Has anyone been through this or similar? I'm desperate for support and I'm terr...

NMPW

•1 year ago

2 Replies

constipated and diarrhoea

About 3-4 months ago I went abroad to attend a few weddings and think I ate way too much food and sometimes at very odd times like 2 am. On my return to the...

About 3-4 months ago I went abroad to attend a few weddings and think I ate way ...

Kash-123

•1 year ago

1 Reply

Cerazette Side Effects - advice on coming off the POP

Hi All, So I have been on the POP Cerazette for 4.5 months and have had various side effects which have come and gone like, painful eyes, frequent long...

Hi All, So I have been on the POP Cerazette for 4.5 months and have had variou...

Circe3

•1 year ago

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What bowel/bladder symptoms do you have?

Hello! I am just wondering what bladder and bowel issued and symptoms your endo causes? I am still waiting for a diagnostic lap but I didn’t really mention...

Hello! I am just wondering what bladder and bowel issued and symptoms your endo...

PBGV24

•2 years ago

6 Replies

Like pooping glass!

I wondered if anyone experiences a really sore bottom when passing bowel movements- not like the deep intense pain in the bowel before pooing, but like sharp...

I wondered if anyone experiences a really sore bottom when passing bowel movemen...

Sunflower6758

•2 years ago

4 Replies

Constipation relief

What a relief to be regular after years of constipation. I didn’t realise that my diet was contributing to this condition. For around 2 years I ate almost...

What a relief to be regular after years of constipation. I didn’t realise that m...

Heather34

•2 years ago

2 Replies

6 Years on and I think it's back!

Hi ladies, not been following these groups for a while as had total hysterectomy in 2016 removing uterus and ovaries after many years of pain with stage 4...

Hi ladies, not been following these groups for a while as had total hysterectomy...

KarenBHorrocks

•2 years ago

2 Replies

Colon hydrotherapy

Hello beautiful people, I had my lap in April and since then I haven’t been opening my bowels regularly if at all for days on end. I am always bloated even...

Hello beautiful people, I had my lap in April and since then I haven’t been op...

NBP22

•2 years ago

1 Reply

Pouch of Douglass

Anyone have endo on the pouch of Douglass. What are your symptoms?

mickeylala

•2 years ago

11 Replies

Endo , mirena or post covid issues? Any advice!

Bit of a long one so please bare with me! I finally got my first UK diagnosis in January 2022 - I was diagnosed in 2015 but that was when I was living in...

Bit of a long one so please bare with me! I finally got my first UK diagnosis i...

Billielaurenxo

•2 years ago

4 Replies

Could this be bowel endo?

Hi all I had a laparoscopy in October and I told them beforehand that I felt like I had bowel endo, as I often bled from my back passage during my period as...

Hi all I had a laparoscopy in October and I told them beforehand that I felt lik...

DalmatianGirl

•2 years ago

13 Replies

rectovaginal nodes

Hi everyone, hope you are all keeping well. I am seeing my endo DR on Monday, after my MRI for treatment planning and next steps. At my last appointment she...

Hi everyone, hope you are all keeping well. I am seeing my endo DR on Monday, ...

Foodman500

•2 years ago

1 Reply

Rectal and hip pain - possible endometriosis?

I've been experiencing lower back/tailbone pain for 8 weeks. Since having a bladder prolapse 2 years ago, I get occasional discomfort in my rectum, but for the...

I've been experiencing lower back/tailbone pain for 8 weeks. Since having a blad...

becisim

•3 years ago

3 Replies

Anyone have sudden onset of uncontrollable diarrhoea when having a flare up?

I seem to have no warning of a flare up apart from I know when I’ve been stressed I’m likely to have repercussions. It starts with severe cramping, pain in my...

I seem to have no warning of a flare up apart from I know when I’ve been stresse...

FarmerA

•3 years ago

10 Replies

Consultant has left - not been told. What happens now?

My surgeon / consultant who performed my surgery has left the hospital I'm being treated at. I only found this out after querying some things from my last MRI....

My surgeon / consultant who performed my surgery has left the hospital I'm being...

ald28

•3 years ago

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Small bowel endometriosis

Hi, I just wondered how is small bowel endo diagnosed? I had a laparoscopy where multiple endo was found some treated and some left for another specialist...

Hi, I just wondered how is small bowel endo diagnosed? I had a laparoscopy where...

MyStar86

•3 years ago

4 Replies

Endometriosis and IBS

Hello, I was diagnosed with endometriosis in April after my GP had initially told me I had IBS. I work in pain management and I’m finding it increasingly...

Hello, I was diagnosed with endometriosis in April after my GP had initially to...

Ecclesiastical

•3 years ago

6 Replies

I am completely desperate with my on going issues

Good evening, this may be a long message so please bare with me I have alot to say but I will be as brief as possible. I have been suffering with mental...

Good evening, this may be a long message so please bare with me I have alot to s...

HEDGEHOGlady0626

•3 years ago

1 Reply

Chest pain and shortness of breath?

I've not been diagnosed, i just suspect endo is my issue. Was wondering if anyone has ever had breathing problems with it? I've been short of breath for a...

I've not been diagnosed, i just suspect endo is my issue. Was wondering if anyon...

Ansubs

•3 years ago

3 Replies

Picolax before bowel resection

Does anyone know what sort of dietary changes I need to do before taking Picolax for bowel resection surgery? I've just been given the medicine with...

Does anyone know what sort of dietary changes I need to do before taking Picolax...

theneverendostory

•3 years ago

20 Replies

6 months since excision surgery, pain with toilet

Hello, I had excision surgery throughout my pelvis and bowel, back in November. I previously has pain when passing a stool and urine, before this last...

Hello, I had excision surgery throughout my pelvis and bowel, back in November....

Amelie8

•3 years ago

6 Replies

Rectovaginal endometriosis or something else?

Hi, I'm new here and worried sick! I'm 26, since I was 11 years old I have a history of heavy, painful periods and have always experienced rectal pain, right...

Hi, I'm new here and worried sick! I'm 26, since I was 11 years old I have a his...

IB15

•3 years ago

3 Replies

Whose second opinion to seek?

If looking for a second opinion, would you pay to see a consultant at another hospital or to have an ultrasound done by a skilled operator? My doctor says my...

If looking for a second opinion, would you pay to see a consultant at another ho...

OllieF

•3 years ago

6 Replies

Advice Please - What would you do? Bowel resection or Shave?

Hi, I’m looking for peoples advice / opinions on what they would do for themselves in my situation... I’ve had 5 surgeries for endo over the years, 2 in the...

Hi, I’m looking for peoples advice / opinions on what they would do for themsel...

Sarah001

•3 years ago

20 Replies

Pain driving me crazy

I'm down for a laparoscopy with suspected bowel endometriosis, I want to ask anyone diagnosed with bowel endometriosis do you feel constant pain on your right...

I'm down for a laparoscopy with suspected bowel endometriosis, I want to ask any...

Jaye75

•3 years ago

12 Replies

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Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

Bowel posts

Waiting for laparascopic Hysterectomy but struggling with womb and bowel symptoms

Urgency card for endo

Severe Bowel Endo/ Adeno

symptoms ?

Can an endo doctor alone handle the complexities of my symptoms?

Preparing myself for a full hysterectomy, bowel resection and stents in bladder......

constipated and diarrhoea

Cerazette Side Effects - advice on coming off the POP

What bowel/bladder symptoms do you have?

Like pooping glass!

Constipation relief

6 Years on and I think it's back!

Colon hydrotherapy

Pouch of Douglass

Endo , mirena or post covid issues? Any advice!

Could this be bowel endo?

rectovaginal nodes

Rectal and hip pain - possible endometriosis?

Anyone have sudden onset of uncontrollable diarrhoea when having a flare up?

Consultant has left - not been told. What happens now?

Small bowel endometriosis

Endometriosis and IBS

I am completely desperate with my on going issues

Chest pain and shortness of breath?

Picolax before bowel resection

6 months since excision surgery, pain with toilet

Rectovaginal endometriosis or something else?

Whose second opinion to seek?

Advice Please - What would you do? Bowel resection or Shave?

Pain driving me crazy

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