Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

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All posts for March 2023

stage 4 endo surgery - success stories?

so I’ve had surgery for stage 4 in an accredited endometriosis centre….it was only a week ago, they couldn’t remove all my endo from my bowel/one of the...

so I’ve had surgery for stage 4 in an accredited endometriosis centre….it was on...

M1673402

•1 year ago

12 Replies

research

researchers discovered that endometriosis may be linked to mental health conditions and eating disorders in women the study which used data from...

researchers discovered that endometriosis may be linked to mental health conditi...

USgalwthendo

•1 year ago

5 Replies

anyone interested in making something with me in response to our lived experiences with endo/PCOS?

Hi there, My name is Anna and I was diagnosed with endometriosis back in April 2023, having suffered with its symptoms for many years before that, and...

Hi there, My name is Anna and I was diagnosed with endometriosis back in Apri...

Endo404

•1 year ago

10 Replies

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Awaiting a lap. Is it worth paying privately for an mri?

I'm awaiting a lap, but I have no idea of how long I will wait. I was originally told I had fibroids in Oct 22, causing my pelvic pain and associated issues....

I'm awaiting a lap, but I have no idea of how long I will wait. I was originally...

Mindfullness4791

•1 year ago

6 Replies

post op

Hi! I have a few questions regarding post op. How did everyone sleep? I’m currently sleeping on my back but absolutely hate it..when can I sleep on my side?...

Hi! I have a few questions regarding post op. How did everyone sleep? I’m curren...

elise1204

•1 year ago

24 Replies

Tiblone experiences

Hi just wondering anyone in tiblone if it made endometriosis worse fed it or it was fine but awful side affects like weight gain etc?Thanks very much natural...

Hi just wondering anyone in tiblone if it made endometriosis worse fed it or it...

Maura37

•1 year ago

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Utrogestan dosage for Endometriosis

Hi I am considering trying utrogestan for endometriosis and wondering if anyone has done this or knows the dosage?Thank you

Hi I am considering trying utrogestan for endometriosis and wondering if anyone ...

Maura37

•1 year ago

5 Replies

prostap

hi guys, Hope everyone is doing well! I have a really stupid question, im such a worrier since coming off the prostap injection. But anyone who has...

hi guys, Hope everyone is doing well! I have a really stupid question, i...

ashleytt

•1 year ago

4 Replies

living with endo

Hi all - first time poster I have stage 4 endometriosis with adhesions to bowel and fibroids. I am due a hysterectomy but have been told by consultant that...

Hi all - first time poster I have stage 4 endometriosis with adhesions to bowel...

Willowmum

•1 year ago

8 Replies

Stopping Cerazette

First time poster, but I’ve taken many tips from this board so thank you all in advance. 2 years ago I doubled over in agony, eventually got sent to A&E via my...

First time poster, but I’ve taken many tips from this board so thank you all in ...

Bookworm3371

•1 year ago

4 Replies

Cyst on ovary

I recently posted here about pain on my left side after an ulcerative colitis flare. I’ve been having this pain since October and was given antibiotics for...

I recently posted here about pain on my left side after an ulcerative colitis fl...

Jooniper

•1 year ago

19 Replies

Missing period after laparoscopic surgery

Hi I'm 40 yo diagnosed with stage 4 endo, had laparoscopic surgery from 4 months 10 days, had my fallopian tube & ovary removed, still didn't get any period &...

Hi I'm 40 yo diagnosed with stage 4 endo, had laparoscopic surgery from 4 months...

Aby82

•1 year ago

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Embarrassed to keep ringing GP.

I had my lap in feb however nothing was found. I was and still am completely shocked by this as I have nearly every symptom of endometriosis. I believe that it...

I had my lap in feb however nothing was found. I was and still am completely sho...

Sky342

•1 year ago

6 Replies

Does endo cause daily pain even when on desogestrel

I'm struggling with daily pelvic pain since my dignotic lap where endo was found but not removed. I've been on desogestrel pill since November and have no...

I'm struggling with daily pelvic pain since my dignotic lap where endo was found...

me94

•1 year ago

6 Replies

pain, bloating, just feeling crap!

hi guys, I was only diagnosed with endo end of last year. I had gone in to be serialised and asked while the surgeon was doing it could he look for endo....

hi guys, I was only diagnosed with endo end of last year. I had gone in to be s...

Fredshop

•1 year ago

2 Replies

Laparoscopy Booked - Recovery Time?

I’ve finally got a date for surgery which is in a few weeks time. I’m worried with work (hoping to start a new job!) with the time off afterwards. Surgeon has...

I’ve finally got a date for surgery which is in a few weeks time. I’m worried wi...

Cats1311

•1 year ago

7 Replies

Glacial Progression at Work

I'm 26 and have endo. I'm a software engineer and I had to take medical leave in my first 12 months at my current company to adjust to new meds (Deinogest)....

I'm 26 and have endo. I'm a software engineer and I had to take medical leave in...

crbp

•1 year ago

2 Replies

Pain relief

Has anyone found any pain relief to be effective? I’ve tried so, so many and there’s not much left for me to try. I have a brilliant GP who is always happy to...

Has anyone found any pain relief to be effective? I’ve tried so, so many and the...

mrsswinnydm

•1 year ago

22 Replies

reassurance

hi all, Am just after a bit of reassurance. I have my lap tomorrow but also due on my period over the next 5 days, if I come on my period will they still go...

hi all, Am just after a bit of reassurance. I have my lap tomorrow but also du...

elise1204

•1 year ago

12 Replies

endo and ibs

hi all… im struggling to get to the bottom of some of my pain and finding it hard to distinguish if its endo flare up or ibs flareup… ive not seen anyone...

hi all… im struggling to get to the bottom of some of my pain and finding it har...

Bondi64

•1 year ago

4 Replies

Endo & leg pain

Morning all, I have endo 1st diagnosed 7 years ago, my last laproscopy was in September 2022, where i was told it had spread. My last cycle was horrendous, a...

Morning all, I have endo 1st diagnosed 7 years ago, my last laproscopy was in Se...

Teebo88

•1 year ago

3 Replies

Confused and seeking advice

Hi - 36 yo, had classic endo symptoms for the last 4-5 years - started seeking medical advice 3 years ago privately - still on the never ending road to find...

Hi - 36 yo, had classic endo symptoms for the last 4-5 years - started seeking m...

Barnowl87

•1 year ago

1 Reply

Endo diagnosis

I’m after some advice please, I have been struggling with a constant battle backward & forwards to doctors for around the past 5 years. It would be a very long...

I’m after some advice please, I have been struggling with a constant battle back...

Cat2202

•1 year ago

8 Replies

After diagnostic laparoscopy

Hi, I had my laparoscopy 5 weeks ago and have been diagnosed with endo (12 years in the making!!). They inserted a coil at the same time as this. Since...

Hi, I had my laparoscopy 5 weeks ago and have been diagnosed with endo (12 ye...

EmmaSheri

•1 year ago

3 Replies

Pregnancy and pain

I was diagnosed last year and had my excision surgery in November. After making the most of the fact I had the surgery, my husband and I started trying for a...

I was diagnosed last year and had my excision surgery in November. After making ...

Cornish05

•1 year ago

2 Replies

Finally seem to be getting somewhere

Finally saw the consultant yesterday, who, it turns out is a specialist in endometriosis and laparoscopy surgery. For the first my pain wasn't dismissed. Next...

Finally saw the consultant yesterday, who, it turns out is a specialist in endom...

Slinks

•1 year ago

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Endometriosis and rosacea

Hello, I spoke to a pharmacist yesterday about a rash that I have across both cheeks which has been inflammed for a few months. He thought the rash looked...

Hello, I spoke to a pharmacist yesterday about a rash that I have across both c...

LDee2022

•1 year ago

15 Replies

Colonoscopy tips?

Hi all, After having a successful lap in November, I was referred for a Colonoscopy which is now coming around in a few weeks. I was wondering if anyone...

Hi all, After having a successful lap in November, I was referred for a Colono...

Chloehawkins_

•1 year ago

3 Replies

excessive discharge

Hi ladies, I was wondering if any of you have had a similar problem / same problem to me. Occasionally I have excruciating pain in my lower abdomen, but every...

Hi ladies, I was wondering if any of you have had a similar problem / same probl...

SupercatTECT

•1 year ago

5 Replies

Feeling lost. Any advice appreciated.

Hello. I hope you are all having a good day. I am looking for some advice on where I can go from here. I was diagnosed with endo last April and had excision...

Hello. I hope you are all having a good day. I am looking for some advice on w...

BeeBumble

•1 year ago

4 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for March 2023

stage 4 endo surgery - success stories?

research

anyone interested in making something with me in response to our lived experiences with endo/PCOS?

Awaiting a lap. Is it worth paying privately for an mri?

post op

Tiblone experiences

Utrogestan dosage for Endometriosis

prostap

living with endo

Stopping Cerazette

Cyst on ovary

Missing period after laparoscopic surgery

Embarrassed to keep ringing GP.

Does endo cause daily pain even when on desogestrel

pain, bloating, just feeling crap!

Laparoscopy Booked - Recovery Time?

Glacial Progression at Work

Pain relief

reassurance

endo and ibs

Endo & leg pain

Confused and seeking advice

Endo diagnosis

After diagnostic laparoscopy

Pregnancy and pain

Finally seem to be getting somewhere

Endometriosis and rosacea

Colonoscopy tips?

excessive discharge

Feeling lost. Any advice appreciated.

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